Ribs

Issues relating to disorders which are related to, or which may occur as a consequence of HMS. Including but not limited to: Ehlers-Danlos Syndrome, Marfans, Osteogenesis Imperfecta, Sticklers Syndrome, arthritis, depression, chronic fatigue syndrome. To include everyday problems such as IBS, eyes, teeth, etc.....

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Any Advice?

Postby mummyto2girlsx » Sun May 04, 2008 12:19 pm

Hi everyone,

I was rushed to hospital in an ambulance again last night with severe chest pain. This pain is beyond belief, and is at my ribs and then shoots up my back. I cannot sit still and find it hard to breathe. This is the 3 rd time this has happened and there is no explanation for it.

it is very debilitating, they gave me a shot of ibuprofen in my left thigh then morphine in my right thigh last night and sent me home saying its miscle pain!

They have told me this th epast 3 times but I have pulled muscles in my chest before and this is NOTHING like it, I honestly feel like its agony and Im dying!

The only common factor on all 3 times its happened is that it started whilst I was in bed at night!

I have now been giving tramadol-but I feel like just cause my lung hasnt collapsed or Im not having a heart attack they just put it down to muscle.

I explained I have HMS and the Dr's had the most blank look on their face-they didnt know what I was talking about!

Sorry for the moan, but I am very scared at the moment as its happening more frequently, and I have to young children to contend with, I feel like my body is fit for the knackers yard!

Thanks for reading, and please if anyone else has ever had the same, please post.

Many thanks in advance.

xx
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Re: Any Advice?

Postby Helly Welly » Sun May 04, 2008 1:15 pm

This sounds like costchondritis to me, but i could be wrong. The pain from costochondritis is really bad, making it hard to breathe without hurting your ribs more. I'm sure someone else will come along in a minute who can explain the condition.
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Re: Any Advice?

Postby mummyto2girlsx » Sun May 04, 2008 1:44 pm

Thanks for your reply.

The dr last night said the pain I was describing was in my ribs, and he asked if I had any fall or injury to them but I dont.

I have just read another thread and every single symptom I am having is relating to the slipping rip syndrome.

I need to get my GP to refer me to a specialist as I have HMS, snapping hip and now showing signs of slipping rib!

I am a wreck.

Thanks again :hug:
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Re: Ribs

Postby mummyto2girlsx » Mon May 05, 2008 12:56 pm

It happened again last night, it is excruciating pain, well worse than bloomin labour!

They gave me a jag of pethidine this time, the Dr was a k**b.

Mod edit - swearing will not be tolerated. Most words are censored but not all ;) - Site Admin

I am making an appt to see my own GP tomorrow! I need to get this sorted x
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Re: Ribs

Postby Eloise » Mon May 05, 2008 12:59 pm

Ouch - sounds awful.

I hope you can manage to get a referral from your GP.

Take care
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Re: Ribs

Postby Eloise » Mon May 05, 2008 1:17 pm

Ok - I have just switched on my MSN to find my brother had next to his name - "nothing beats a bank holiday trip to A&E"

This is my brother who can do all the party tricks but up to now has had no problems, woke up unable to breath as his ribs hurt that much. The A&E docs says he knotted a muscle inbetween his ribs, and to take anti-inflammatorys.

I really hope he isn't getting this. But there again - just has an agrument with him as I don't think he believes I have pain and has just said - "well this has been agony and I still carry on!" grrr.
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Re: Ribs

Postby Rosie » Mon May 05, 2008 5:52 pm

Hi Elouise

It does sound like your HMS/HEDS is now effecting your ribs, whether it is slipping ribs syndrome, costochondritis, or just plain old ribs subluxing or dislocating. All these are part of HMS for some people, as they can all be due to lax ligaments.
The dr last night said the pain I was describing was in my ribs, and he asked if I had any fall or injury to them but I dont

This is also typical of HMS - we can injure ourselves in ways that would normally be due to some trauma or injury, and with us it can be instantaneous, with no injury first. It is also typical that a Dr with no specialist knowledge of HMS would insist that there must have been a previous injury, they really don't know any better.
I can't remember whether you have seen an HMS specialist? If you have not it may be a good idea to ask for a referral to one of them. If you already have a diagnosis, do you see a rhuemy who knows about HMS? or just your GP if they are understanding? You need to talk this rib thing over with someone so that you can try to prevent it happening again, and to know how to cope when/if it does happen again, and maybe just to check that nothing else is causing the pain.
Good luck

:bye:

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Re: Ribs

Postby Eloise » Mon May 05, 2008 6:32 pm

Rosie,

It wasn't me with the ribs - it was mummyto2girlsx. Luckily I have never had any problems with my ribs, and I am just hoping that the problem my brother has had with his ribs today isn't any sign of HMS in him.

Eloise
Benign Joint Familial Hypermobility Syndrome (BJFHS) - Confirmed Prof Bird April 2008 :)
I am a Pharmacist and I will give my opinion on these boards. However, always ask your own health professionals for your individual circumstance.
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Re: Ribs

Postby Rosie » Mon May 05, 2008 6:58 pm

oops! sorry Ellouise :oops: I can't keep anything straight in my mind for 2 seconds!

:bye:

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Re: Ribs

Postby mummyto2girlsx » Mon May 05, 2008 9:31 pm

Thanks Rosie for your very informative and helpful reply.

I am booking an appt with GP tomorrow (was Bank Holiday today) its got to the point just now that I am terrified of going to my bed in case I wake in agony like the 2 previous nights!

(I have just taken 2 dehydracodeine as a precautionary measure :oops: )

I will keep you posted on how I get on, and once again many thanks!

xxxx
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Re: Ribs

Postby Retro » Tue May 06, 2008 12:34 am

Unfortunately ribs really hurt and take ages to settle back down properly, if you're lucky. If you're like me tho' the dodgy ribs come and go (see a few pages back).

As Rosie said, it can happen spontaneously or from the slightest movement. In my case is was a chest infection :roll: well the resulting coughing anyway!

Lindsey
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Re: Ribs

Postby clm7214 » Fri May 30, 2008 7:03 pm

This is my new favorite web forum.

I didn't know others had the weird rib problem also. Its like one will get dislocated and it feels just like a broken rib, making laying down or breathing very painful. I've spent many a sleepless night like that. I've found that if i puff up as big as i can and stretch out my arms in front of me i can sometimes feel it snap and go back into place. Sucks, but glad i'm not the only one.
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Re: Ribs

Postby Jooolz » Sun Jun 01, 2008 12:04 pm

I too have this problem and have been admitted to hospital twice with chest pain... once - they thought it was kidney stones and other time ( 2 days ago ) they thought it a pulmonary embolism /heart... ( I am 1 week post op for ankle op) leaving hospital both times being told that it is muscular - in some ways thats good news....its not life threatening... yet it it doesnt seem so good really because you are still non the wiser and usually still in pain !!)

BUT this time I had pain in the front of my neck ... on a scale of 1 to 10 where 10 is the worse pain - it would measure 9 - so it s pretty bad pain ...

has anyone else had acute pain in the front of the neck to the side of windpipe? ...which has been attributed to ribs/ costochondritis .. or Tietze's syndrome?

also my physio says a lot of chest pain can be tracked down to the back - I have 2 disc problems and he has proved by the kind of treatment he gives me that the pain is related to the disc problems..... but when you can feel your ribs click in and out - I am sure that it must be both back and ribs
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Re: Ribs

Postby Clarabel » Mon Jun 02, 2008 10:28 pm

What is the actual relationship between HMS/EDS and big ribs? I have read a few rather wooly things on it. I am wondering if it's a HEDS thing that I have a rib cage that goes directly diagonally out forward rather than having any curve in it. I also find that if I wake up on my front it feels like I have slept under a wardrobe, and I have to take 10 minutes to breathe and re-expand my chest. The breathing is not too bad, it's not excruciating, thank goodness, it's just trying to un-squash the ribs. It sounds as if that's actually something quite familiar in the HEDS world. I had always thought it was just me, and had never quite been able to explain it to anyone. There is nothing I can do about the mattress for long and boring reasons - is there anything I can do with a much smaller item like a pillow or something to help? Gosh, how very many things are HEDS!
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Re: Ribs

Postby TED » Wed Jun 04, 2008 9:24 am

Two of my girls are skinny and you ca see their rib cage. Both have a bit that sticks out at the top of the rib cage at the front. You can push the bone and it moves. Eva is only 20 months (just counted up WOW!! gone so quick) Carrie is 6. Carrie is the most flexible of my older 3, Eva of course has similar flexibility but is too young to see how she will be when older but my suspicion is that since she is following Carries pattern she will be the same 9/9 that she is. What is this? Why can this bone move? Will this cause their ribs to slip?

Does anyone Know?

Chest pain/breathing problems seem to be quite common it seems from what I read on here. I get a tight chest feeling sometimes sort of numb tingly feeling round my chest area sometimes I struggle to get a breath in and Heather and Chloe have the very same problem. It gets quite bad sometimes. Heather feels she cannot breath & Chloe gets bad chest pain and all these things are quite alarming. I have had them both checked out for asthma but that was all clear. I was told also that is was muscular. While I am glad it is not asthma we have got it just means we a left with another problem with no solution as there is nothing can be done for it.

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