Costochondritis

Issues relating to disorders which are related to, or which may occur as a consequence of HMS. Including but not limited to: Ehlers-Danlos Syndrome, Marfans, Osteogenesis Imperfecta, Sticklers Syndrome, arthritis, depression, chronic fatigue syndrome. To include everyday problems such as IBS, eyes, teeth, etc.....

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Postby bobo_n » Tue May 02, 2006 10:55 pm

Hi ya Emma,

I'm really sorry to hear that you are having such a hard time with those ribs of yours. I kind of know how it feels. Mine dislocated a while ago for the first time and it was one of the worst pains that i have ever experienced. You can't breath or anything. I feel really lucky though as the pain was gone within half an hour and just left with a dull ache.

You make sure that you listen to the advice and stay off work until your completely better. Put your feet up and get pampered.

Take care of yourself and keep us up to date on how your doing. Thinking of you.

:sorry:

Jo.
XXX
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Postby GLYNIS » Wed May 03, 2006 9:44 pm

Emma. Funny we tell one another to take it easy and dont,and do to much . and it takes one little thing to put us off our guard,ooops, dont want to make you ribs hurt anymore , the pain I know och. But on monday quite a nice day what I know of it after 11.30 ish breakfast pill time , well I think I have posted this somewhere befor , But here goes :!: Idid a little gardening ,, just a bit you understand (more of a poke about) well we have a nest of blackbird eggs , second generation, OOOOHHH theMAGPIE was swooping down and pinching themm.had 3 out of the 4 .eggs. my hubby was netting the top of the bush , with me as lookout hobbling up and down the path, and after perhaps and hour all was well, But I was not , In the morning hubby checked the nest eggs all gone ,,,, me in bed ...for my pains so to speak....Pain Free hugs emma...
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Postby sanguine_emma » Thu May 04, 2006 1:18 pm

Hello all. Well, the good news is I'm feeling MUCH BETTER :clap: The pain has gone back to being a heavy weight in my chest and a kind of ache all around my ribs (and a gigantic muscle spasm, but that's always there in one form or another, so we won't talk about that). I had a fright yesterday because the ribs on the other side started hurting too, but they've given up on that idea now. I have been sooo good, you'd all be proud of me. All I have done for the last two days is sleep, make toast and surf the internet. It wasn't until I gave myself permission to have time off work that I realised exactly how much pain I had been in denial about! I have a truly astounding capacity for 'carrying on regardless', I think that a few of us on here are like that. I also noticed that when I take all my pain meds plus the diazepam I instantly fall asleep. So there I was at work, irritating a traumatised rib by expecting it to do normal tasks, ignoring vast amounts of pain and forcing myself to be awake when my body was saying "mmmm...Diazepam...sleep" :roll:

I have a history of doing things like this. My body generally has to do something dramatic (fainting on the poor IT man, case in point) to make me take notice. Do feel very silly afterwards though.

Tomorrow I get to go and see the rheumatologist, which for once has come at a most excellent time. Can't say I'm looking forward to it though, as those of you who have read my previous posts about him will understand!
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Postby midnightangel » Fri May 05, 2006 10:17 am

Glad to hear things are improving. It is astounding how often we carry on regardless, despite our bodies best attempts to say, stop, slow down, rest and pay attention... I think a lot of that is a kind of social expectation, and for me, a personal wish to not give in, but like you I recently realised that its not a good way to go, and that carrying on whilst in pain etc, is not what life is about.
Good luck with the appointment!
I should have read the small print before I signed up for this life!
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Postby sanguine_emma » Fri May 05, 2006 9:48 pm

Golly what a day. Any of you who want to see my rant about my truly unhelpful rheumatologist can see it in Miscellaneous MOVED TO DIAGNOSIS AND DOCTORS NOW (and yes, he lived up to his reputation well and truly), but when I asked about what was wrong with my ribs and how I could make them better, the answer was something along the lines of "well, what do you expect with a condition like yours?" so nice and helpful then. I cut back the meds today so I could get myself to work for a couple of hours and then to the appt (going to work was really a ploy to get a parking space somewhere vaguely near the orthopaedic hospital!) but now i feel (a) drained, physically and mentally (talking to my rh is like some kind of mental skirmish), and (b) like there's a dagger sticking out of my sternum. But my friend has lent me her dog for the weekend while she goes to a wedding, and he's so cute :dog:

Hey ho. Hope y'all are doing OK tonight!
Last edited by sanguine_emma on Tue May 09, 2006 7:11 pm, edited 1 time in total.
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Postby Green Thistle » Sat May 06, 2006 12:41 pm

Hello,
Emma, sorry to hear about your most recent rib dislocations. I hope you feel better soon. After several baby-related rib popping episodes a few months ago I'm still having lots of rib pain - mostly muscle pain I think - although often it feels like the rib has slipped out again (rather than popped). Some days are better than others, and I think that generally it's improving, but just taking ages and ages, and not made easier from carrying heavy baby around, although I think this 'weight-lifting' is probably making me gradually stronger ! (I say this hopefully... :roll: )

I can really relate to the problem of not being able to turn over in bed. I've sort of got used to this now and it's very horrible, and getting out of bed in the morning is also a real struggle. I have been trying to breathe with my diaphram, although not being singer, this is quite hard for me. I agree it does help a bit though as not being able to inhale fully is a big hassle. I can also sympathise with the whole hiccup thing - very painful, and so is sneezing, which isn't good as the hayfever season is upon us! Do you also find it hard being in a car/bus? Any jolt really hurts.

I don't have the dagger feeling, but I do get what feels like burning under my skin next to a vertebre level with my shoulder blade. Does anyone know what this can be?

Anyway, I just wanted to add my two-penneth as these points are things that are happening to me too, and I've been meaning to post about them for ages and ask if they happen to anyone else. This thread is so helpful for me :) .
"Although Eating Honey is a very good thing to do, there is a moment just before you begin to eat it which is better than when you are."
"No matter how bad things seem… nothing could be worse than being used as a towel rail."

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Postby sanguine_emma » Sat May 06, 2006 5:17 pm

Hi Heather

Nice to meet you. Sorry you have the whole rib saga too! Keep trying with the diaphragm bit, it takes a bit of practise but it's worth it. Pain by shoulder blade YES! Feels like someone pushing a drawing pin in really hard. thin it's rib related. Have to go now as going out, just wanted to say hi. Emma xxx
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Postby sanguine_emma » Tue May 09, 2006 7:21 pm

Hi all yes, it's me again. Ribs on other side hurting for definite now, so that whole ribcage feels like its joining in. I can't function for more than a few hours at a time. My boss has been so helpful about it all, I don't know what I'd do if he wasn't. I've just signed up with a private physio recommended to me by the rheumatologist. I'm going for an hour on monday to start off with, then see what she recommends. I'm really hoping she knows how to deal with stoopid ribs. wish me luck, desperately need something to start working soon.
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Postby GLYNIS » Tue May 09, 2006 10:52 pm

Emm me again let me know how its goes , mine are not quite as bad today, But my r/hand and r/foot are a complete pain, seems that one side of me has gone dolaly tat, Intrested what the new physo says, My sister in laws hopless going to send her our new booklet...She says shes hecktic enough with her 3 practises, Has not got the time , there I have said it know ,feel better for that, best luck emm....
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Postby sanguine_emma » Thu May 25, 2006 6:10 pm

Update:

First physio appt cancelled due to her being stuck in traffic, but finally got to see her on monday. We had an hour of assessment, the usual 'bend here, twist here, what happens if i poke you there...' you know what it's like. Anyway, she gave my rib cage a good old shove arond and said that the left side felt more mobile that the right. She seemed to think that instability in the toracic spine meant I was likely to do a rib at any time :shock: , so she sent me away with some exercises to work on. I've learned to expect some pain after physio, but this week has been really bad. my ribs haven't taken kindly to being pushed around, so I've had muscle spasms and shooting nerve pains around my chest ever since. The minute I start to get tired it starts up again. I've been busy at work which hasn't helped. I guess I don't have to tell you guys how miserable it is seeing as how you've all been there, but I'm really being worn down now. The pain varies between heavy, dragging feeling in chest to sharp pain like being stabbed to prickly feeling all over my back, down left arm and into left breast (nice). It's not like me to be blue, but I just want to :cry: .
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Postby GLYNIS » Fri May 26, 2006 8:02 pm

Oh emm Im so sorry , Bless you, Sorry to say thats why I leave well alone , as far as I am concerned ,I do feel for you as I know you have sufferdwith your ribs alot latley , mine are not to bad at the Mo , pain free hugs .....
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Postby sanguine_emma » Sat May 27, 2006 5:25 pm

thanks glynis, feeling less fed up now. But now back has done something horrible too. Grrr! I'm hosting a local group meeting tonight, and I'm a total cripple! At least everyone is likely to understand when I say "I have no idea what is wrong, I just woke up and found I couldn't move" :lol:

Great news though, I got my referral to Prof G through this morning. This means that the local health authority are going to fund it for me, which is nothing short of miraculous given the £33M in debt Oxon is at the moment. It feels like winning the lottery!
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Postby GLYNIS » Sat May 27, 2006 9:34 pm

good news re the referal emm, Hope the meeting is not to strenuous for you,Hope all goes well, Nurse those ribs , wont you.....
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Postby nonyanomemory » Thu May 10, 2007 1:52 pm

46yr female EDS H/mobility Type c/over vascular Dxd Prf G
V Prem club ft short stature early onset varicose veins thin skin
Striae o'rthritis/porosis PHN POTS spasms n'pathic pn IBS bladder stuff bulging discs & more!

d/tr severe EDS 20 yr
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Postby Riciamarn » Fri Jun 15, 2007 10:28 pm

Just wanted to give a quick update. I have managed to find out that this can be caused by the radiotherapy I had for breast cancer :(
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