Issues relating to disorders which are related to, or which may occur as a consequence of HMS. Including but not limited to: Ehlers-Danlos Syndrome, Marfans, Osteogenesis Imperfecta, Sticklers Syndrome, arthritis, depression, chronic fatigue syndrome. To include everyday problems such as IBS, eyes, teeth, etc.....
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I have been suffering with awful hand pain for the last week or so. I was officially diagnosed in April and since then things have gone from bad to worse!
I am used to the usual pains in various places and can usually cope ok with the help of meds, but the pain in my hands is now relentless. I wake up with them stiff and sore and this gets worse as the day goes on with constant pins and needles.
My fingers don't dislocate but the top joints feel loose and like they have been stretched. I did manage to sublux the tip of my little finger at work in the week but I'm hoping that was a one off.
The rheumy that diagnosed me did mention osteoarthritis and that it was inevitable but just gave me a leaflet and said she didn't need to see me anymore as my GP could handle things.
I have lots of joint and dental issues, I take vit d supplements, I'm waiting for a podiatry referral and now I'm being tested for diabetes. All of which cause their own problems but effectively losing the use of my fingers is what is worrying me most at the moment.
I don't know if it's HMS, or osteo related and my GP is pretty unhelpful.
Any suggestions please anyone??
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- Joined: Thu May 17, 2012 5:18 pm
My wrists have always been particularly bendy. however in the last few months my right wrist has been a nuisance, it doens't feel the same it hurts to put pressure on it and doesn't bend anymore like the left one and it grinds and crunches like never before (a horrible sensation) it still clicks but it's almost like it's stiffened up entirely..... Anyone have anything similar?
Diagnosed 2001 HMS
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- Joined: Mon Feb 21, 2011 11:47 am
- Location: West Lothian
I didn't think I had subluxes or dislocations but yesterday I had pain and swelling in the middle joint of my middle finger, it also looked bruised inside(rather than on the surface), I put some traction on it and it popped and felt much better but still tender. I realised I have had these before quite a few times and get it in the base and second joint of my thumb. Does this sound like a subluxation to you guys? It doesn't look out of place or at an odd angle.
migraines, fatigue, multiple chemical sensitivities, gluten and lactose intolerance, bursitis, ulna nerve pain, hypermobility, and possibly POTS.
Finally Diagnosed with HMS/EDS on 5th September 2012 by Professor Grahame
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- Joined: Mon May 14, 2012 5:16 pm
- Location: East Berkshire/South Bucks
Yes Bendyneck, it sounds like a sublux to me. I get similar with my toes. Eventually I think to do traction, it goes pop and is much better again. They can look deformed before traction but should be better afterwards.
Joint group leader for South Central (Bucks, Oxon, Herts)
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- Joined: Tue Apr 24, 2007 1:48 pm
- Location: Milton Keynes
Is your fingers getting locked in weird positions a sub-lux? This has been happening more and more to my left hand, and I'm getting more pain too. It's annoying as like many people on here I use my hands for my job a lot!
I should be getting hand exercises when I see my new physio but i want to be able to properly describe what happens to it!
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- Joined: Sun Dec 23, 2012 10:44 pm
Hi. Has anyone got any advice on little finger knuckle pain? I've had it for a little while now and its getting worse, starting to run down towards my wrist and up the finger when i bend it. It is my non-writing hand, which is hypermobile (my writing hand isnt hypermobile). I cannot strap my fingers together as I need to wear gloves at work and wash my hands a lot.
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