Hope you are enjoying the Easter hols, we even have a little sunshine today! Over the school holidays I have not been setting my alarm clock which means I have been waking up naturally, lovely! When I wake up though, in that moment when I am awake but have not moved or opened my eyes I am even more acutely aware of my tinnitus. A worrying symptom though is that every minute or so the tinnitus completely stops. It is like someone has turned off a waterfall and all of a sudden there is complete silence, then fractions of a second later it starts again. I have been looking up tinnitus on the web and think I probably have pulsatile tinnitus, I am worrying that the silent moments are when I am skipping heart beats. The silences don't happen during the day even if I sit quietly and meditate there are no gaps in the rushing/ringing sound in my ears, just happens when I am asleep. Sometimes though I wake up in the middle of the night with a racing pulse. This used to happen every night before I started taking amitriptyline, now just once in a while. I am on the waiting list for the autonomic unit but it could be many months until I get an appointment, should I bother my GP with it or is he just going to think I am coming up with another made-up symptom? How urgent do you think it is that I get this investigated?
migraines, fatigue, multiple chemical sensitivities, gluten and lactose intolerance, bursitis, ulna nerve pain, hypermobility, and possibly POTS.
Finally Diagnosed with HMS/EDS on 5th September 2012 by Professor Grahame