TMJ Dysfunction..

Issues relating to disorders which are related to, or which may occur as a consequence of HMS. Including but not limited to: Ehlers-Danlos Syndrome, Marfans, Osteogenesis Imperfecta, Sticklers Syndrome, arthritis, depression, chronic fatigue syndrome. To include everyday problems such as IBS, eyes, teeth, etc.....

Moderators: gila, Blaadyblah, Rosie, Retro

Re: TMJ Dysfunction..

Postby Spireite » Sun Mar 28, 2010 11:09 am

Lil Miffy,

My left cheek was numb for years (8-10) and my left jaw has been very clicky for years. My left cheek stopped being numb as I got some neck treatment (prolotherapy) and my neck improved a lot. However, my jaw is still very clicky and muscular so I may have to get that done later, but it isn't top priority for me. I suffer at the dentists just having a check up ie having my mouth open! I refused to have my wisdom teeth out by some overzealous dentist, but then they are quietly minding their own business, so no point that I can see!
Joint group leader for South Central (Bucks, Oxon, Herts)
Spireite
addict
 
Posts: 965
Joined: Tue Apr 24, 2007 1:48 pm
Location: Milton Keynes

Re: TMJ Dysfunction..

Postby Fiona-Jane » Thu Aug 12, 2010 8:18 pm

my TMJ flared up on my right side last night and is properly driving me crazy today. the is a bit different to how it usually is though, and is spread all the way towards my nose, up to my eyebrow (and a little higher) and almost all the way along my lower jaw to my chin. but is far worse just in front of the joint and feels like i've been stabbed with a knife. :cry:

my jaw is really tight too although massaging it has made me able to open my mouth by a good inch or 2. chewing hurts like heck.

the muscles have been slowly tightening up over the last few days and i should have paid more attention to them..... oops... :lol:

although it's driving me mad it does have good timing- i'm seeing the rhumatologist tomorrow afternoon about my worsening walking and the problems that have crept up on me over the last year. so i can add this to my list and hopefully get some advice about it.

i'm off to stick a hot water bottle on it and sulk! :lol:

fi xx
Ehlers-Danlos Syndrome (Hypermobile Type) finally diagnosed Feb '08, and a baffling array of other conditions just so my EDS wont get lonely ;^D

my blog : My EDS and its associated randomness.....
User avatar
Fiona-Jane
addict
 
Posts: 988
Joined: Sat Jan 07, 2006 2:57 am
Location: London, UK

Re: TMJ Dysfunction..

Postby sheppeyescapee » Tue Nov 23, 2010 12:53 am

My jaw doesn't seem to want to stay in place. It's been very clicky for the last 12 years but getting steadily worse. It hurts up the side of my face and into the left eye. Keep getting tingling sensations down the left side of my face. Even smiling hurts :(
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
sheppeyescapee
Carpal tunnel
 
Posts: 1235
Joined: Fri Sep 18, 2009 2:43 pm
Location: Stoke Gifford, Bristol, UK

Re: TMJ Dysfunction..

Postby nathhead » Fri Feb 04, 2011 5:53 pm

Hi, just wanted to comment on the use of bite guards. They don't stop the grinding/clenching just stop the destruction of enamel. You'll still be putting the same amount of pressure on the TM joint and eventually they can lead to an occluded bite from moving the teeth themselves. This is just a guess but I'm pretty sure these processes will happen much faster in people who have hypermobility or EDS so it's very important for us to get it treated with methods proven to work, there's no evidence that splints work over the long term.
The only bruxism (grinding/clenching) treatment method that seems to work is known as the sleep feedback approach which involves wearing a device which either fits in the mouth and sounds an alarm when you bite called the oral sensor (not been able to find these) or there's one with a band that goes round the head and senses when the relevant muscles tense during sleep waking you up, I believe that one's called grind alert but they're not cheap at all. I'm about to ask my gp if he can get me one so will report back if successful. More info - http://www.is.wayne.edu/mnissani/bruxnet/nocures.htm
nathhead
New User
 
Posts: 4
Joined: Wed Nov 17, 2010 1:19 am

Re: TMJ Dysfunction..

Postby Jill » Fri Feb 04, 2011 7:02 pm

Has anyone tried wearing dental braces in adulthood? I was told recently that getting the right occlusion and moving the jaw into the correct position could help TMJ a lot. I spend all my childhood in braces, and the occlusion is still far from correct.
HMS books are silent about that.
User avatar
Jill
Member
 
Posts: 113
Joined: Wed May 05, 2010 7:31 pm

Jaw and facial pain?

Postby Madja » Fri Mar 25, 2011 11:44 am

I've checked the search facility and can't find any other mention of this.
I wear a night splint because I'm a tooth grinder, but over the last few years I've suffered terribly from jaw pain which radiates from my neck, up into my jaw and affects my teeth and behind my nose.
My question is does anyone else suffer from this, and how have you got any relief, particularly from breaking the bruxism?

modnote: topic merged into existing thread: search term 'bruxism'
Madja
newbie
 
Posts: 28
Joined: Tue Mar 15, 2011 10:37 pm
Location: Leeds, UK

bizarre injury

Postby anna » Fri Apr 22, 2011 7:15 am

I just wondered if anyone else has ever done this and how to prevent it. Mods - if this is in the wrong place please move but I really would like people's knowledge on this one. I went to bed feeling OK I woke up at 4.30 yesterday morning in searing pain with my jaw locked over a specific capped tooth. Went to dentist who is unsure whether it's an infection or an injury. I'm not diagnosed with TMJ but he immediately commented on my loudly clicking and highly movable jaw. He also commented I had the weirdest bite he's ever seen. Any ideas anyone? Can you get an infection that fast? Would your jaw locking and grinding cause an injury? Yesterday there was no discernible swelling, today I would say there is.

modnote: merged with main TMJ thread
hi, hms sufferer, diagnosed at age 45!!!!!
anna
enthusiast
 
Posts: 276
Joined: Fri Aug 04, 2006 10:56 am

Re: bizarre injury

Postby anna » Fri Apr 22, 2011 10:18 pm

I would guess by the lack of answers this really is a bizarre occurrence hee hee!!!
hi, hms sufferer, diagnosed at age 45!!!!!
anna
enthusiast
 
Posts: 276
Joined: Fri Aug 04, 2006 10:56 am

Re: bizarre injury

Postby realrosie » Fri Apr 22, 2011 10:46 pm

HELLO, DO NOT BE AFRAID as I have experienced this .When I lived in the Mountains of the Sonoran Desert there were bugs that looked like a small beetle with an orange spot.I am now in Minnesota,right next to canada. Here we have smaller bugs like this but they come with the boxelder trees and they don't bite. The ones in Mexico though BITE! They call them kissing bugs,but I know better they have an anaphalactic reaction on me. I've also a severe case of altitude intolerance,EDS and unhealthy teeth. Perhaps this is something like mine a combination of Rare Disorders and timely venom...If we have hypermobility...My bite fluctuates greatly!I also had a head injury in infancy and was hydrocephalic. Could this help you??Hope so!
realrosie
New User
 
Posts: 11
Joined: Thu Feb 03, 2011 10:46 pm

Re: bizarre injury

Postby Rosie » Fri Apr 22, 2011 11:47 pm

Hi Anna

I have to say that as injuries go, it really isn't that bizarre. It is very common with EDS for injuries to occur without any trauma; also very common that they happen in your sleep. It sounds like your jaw has subluxed or partially dislocated, and being out of place means it has locked.
Yes, this type of injury can cause swelling as there is often some soft tissue damage. Pain is also part of this. The clicking jaw movement and hypermobile jaw are also common symptoms of EDS/HMS.
There are dental issues with EDS, so have a look at other threads on dental problems, teeth and bite, the search tool should be able to find them for you. How is your jaw now? Did it release ok? For me, jaw problems come and go, from loud dclicking and locking, to behaving fine.

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
User avatar
Rosie
Moderator
 
Posts: 3295
Joined: Fri Jun 24, 2005 8:58 pm
Location: Brighton area

Re: bizarre injury

Postby sheppeyescapee » Sat Apr 23, 2011 1:40 am

I've had similar things happen with my jaw before. Had a clicky, grinding, locking jaw since about the age of 15.
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
sheppeyescapee
Carpal tunnel
 
Posts: 1235
Joined: Fri Sep 18, 2009 2:43 pm
Location: Stoke Gifford, Bristol, UK

Re: bizarre injury

Postby anna » Sat Apr 23, 2011 10:13 am

Many thanks for your responses. In reply to your question Rosie, I am now swollen up and I guess if it's an infection the antibiotics will reduce that. I think you are probably right that that there is soft tissue damage because the tissue in the mouth is VERY sore. Having dislocated/partially dislocated other bits of me I somehow wasn't expecting my jaw to do this too!!! Obviously I'm back into my accident prone phase!!
hi, hms sufferer, diagnosed at age 45!!!!!
anna
enthusiast
 
Posts: 276
Joined: Fri Aug 04, 2006 10:56 am

Re: bizarre injury

Postby carolyn » Wed Apr 27, 2011 12:40 am

My jaw locks when I yawn, it's so painful. But I've been very sensitive with my teeth and gums too. Very vunerable to infections :cry:
carolyn
Member
 
Posts: 34
Joined: Thu Apr 14, 2011 6:31 pm
Location: Liverpool, UK

Something in my jaw went snap...

Postby Green Thistle » Sun May 01, 2011 5:36 pm

So last night I was just opening my mouth to brush my teeth and something snapped very painfully in my right jaw. (It was very different to just clicking or cracking; it was a definite snap that felt very wrong indeed). Then the pain carried on just below my ear. It hurt consistently for a while, and today it still hurts when I move my jaw in a certain way. And eating also hurts at times.

I've had problems with 'uneven attachment' of my jaws for as long as I can remember. While my left jaw seems to be attached properly (securely?), my right one has always been very loose, and very clicky. (Causes big problems at the dentist when I need to keep my mouth open for any length of time..)

So, does the snapping thing seem familiar to anyone? What could it be? Don't think it can be a dislocation as it doesn't really look/feel different, other than the pain. Any suggestions gratefully received. :S
"Although Eating Honey is a very good thing to do, there is a moment just before you begin to eat it which is better than when you are."
"No matter how bad things seem… nothing could be worse than being used as a towel rail."

- Pooh Bear
Green Thistle
Member
 
Posts: 175
Joined: Fri Oct 03, 2003 12:48 am
Location: London

Re: Something in my jaw went snap...

Postby anna » Mon May 02, 2011 6:22 pm

Personally, I'd get that looked at, just in case, particularly if the pain continues. Good luck :D :bye:
hi, hms sufferer, diagnosed at age 45!!!!!
anna
enthusiast
 
Posts: 276
Joined: Fri Aug 04, 2006 10:56 am

PreviousNext

Return to Related Conditions

Who is online

Users browsing this forum: No registered users and 1 guest