IBS

Issues relating to disorders which are related to, or which may occur as a consequence of HMS. Including but not limited to: Ehlers-Danlos Syndrome, Marfans, Osteogenesis Imperfecta, Sticklers Syndrome, arthritis, depression, chronic fatigue syndrome. To include everyday problems such as IBS, eyes, teeth, etc.....

Moderators: gila, Blaadyblah, Rosie, Retro

Re: IBS

Postby madmum » Sat Feb 05, 2011 11:33 pm

My son is improving. I took him off dairy produce and his symptoms have improved so looks like lactose is an issue again.
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
User avatar
madmum
Carpal tunnel
 
Posts: 2303
Joined: Wed Feb 17, 2010 11:20 pm

Re: IBS

Postby Jess » Thu Feb 10, 2011 11:22 pm

Has anyone had a sore belly from Asparagus??
I know it sounds randome but within 30mins often earlier than later my belly really doesnt like it I think.
I feel like a bowl of Rice Cripsies!! I'm snap, crackling, popping everywhere!

Nottinghamshire & Warwickshire Support Group Co-ordinator
Jess
addict
 
Posts: 604
Joined: Mon Feb 12, 2007 12:06 pm

Swollen tummy question

Postby wobblywoo » Fri May 06, 2011 12:19 am

I'm wondering if this can be part of HMS and if so what the causes might be? do gastro problems occur with HMS?

Throughout my life have always had a flat tum and been quite skinny, always struggled to put weight on. over the last year or so my tum has got bigger and bigger to the point i look pregnant :S but i have not actually put weight on anywhere else or as far as the scales show.

The gp told me a year ago that it could be IBS or weight gain, neither of which i think are right as after that i lost half a stone and still had a huge belly :roll: . I am going back to GP in a week or so and am hoping someone might have some ideas.

I have Endometriosis and my gynea did an internal scan and said it's not gynea related and i need to see a gastroenterologist.

thank you :D :bye:

wobblywoo
x
Diagnosed HMS 2009.
Son, 18 diagnosed 2011.
Endometriosis
Osteopenia
Diverticular Disease
User avatar
wobblywoo
Member
 
Posts: 121
Joined: Sun Nov 30, 2008 12:47 am
Location: Derbyshire

Re: Swollen tummy question

Postby loosebones » Fri May 06, 2011 8:47 am

Have you been tested for Coeliac disease? This can cause a swollen distended stomach and make gaining weight difficult. It's worth asking as the test is very simple and if it is the problem then the solution is very easy. Not sure what else to suggest.
"Just when I got my head together, my body fell apart".
"I think I have a problem with my joints..."
The heaviest thing I can carry is a grudge.
User avatar
loosebones
Forum Moderator
 
Posts: 1386
Joined: Mon May 21, 2007 1:46 pm
Location: west sussex

Re: Swollen tummy question

Postby Spireite » Fri May 06, 2011 7:33 pm

Wobblywoo,

It happens to me from time to time. It is very annoying when you have a protruding stomach all of a sudden on a slim body. Then mine goes. Who knows why. I thought it was just normal - well it is for me.
Joint group leader for South Central (Bucks, Oxon, Herts)
Spireite
addict
 
Posts: 966
Joined: Tue Apr 24, 2007 1:48 pm
Location: Milton Keynes

Re: Swollen tummy question

Postby wobblywoo » Fri May 06, 2011 10:39 pm

Thanks for taking the time to reply :D

I had a blood test for Coeliac about a year ago which was negative, but i have been reading up on that and apparently if you have not eaten gluten in the days before it can be negative. My belly is big all the time but gets worse after white bread and pasta, I am thinking i maybe gluten or wheat intolerant so am going to keep a record for the next couple of weeks of what happens, i am seeing gp in a couple of weeks.

It does feel like whatever holds everything in has given way though, very odd :S
Diagnosed HMS 2009.
Son, 18 diagnosed 2011.
Endometriosis
Osteopenia
Diverticular Disease
User avatar
wobblywoo
Member
 
Posts: 121
Joined: Sun Nov 30, 2008 12:47 am
Location: Derbyshire

Re: IBS

Postby madmum » Sat May 07, 2011 12:06 am

Have you been checked for hernia? I have an umbilical hernia which is small but knew someone with a large one which made her look pregnant. Going back to my son he was in fact back to being lactose intolerant so back to the dairy free diet. G.P said never heard of it returning but specialist said he may get regular flare ups due to his hms and past issues.
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
User avatar
madmum
Carpal tunnel
 
Posts: 2303
Joined: Wed Feb 17, 2010 11:20 pm

Re: IBS

Postby nemonie » Sun May 08, 2011 2:50 pm

If you do try a gluten free diet check everything you eat at they hide that stuff in the most random places :roll:

I know a lot of us bendies have had negative coeliac tests but have had quite positive results from going gluten free, so I do wonder if we have some random gluten response that is different to the usual coeliac antibody. Just my little theory anyhoo.
Finally diagnosed with EDS-H and POTS after 20 years by the lovely Prof G \o/
Group Leader for Teesside & Co. Durham
User avatar
nemonie
addict
 
Posts: 861
Joined: Thu Oct 29, 2009 1:45 pm
Location: UK

Re: IBS

Postby wobblywoo » Sun May 08, 2011 11:31 pm

Thanks Madmum and Nemonie :D

Madmum, I had not thought of hernia as i thought that would just show as a lump but will look into it. I hope your son gets on ok with the dairy free diet :D

Nemonie, I can imagine it's a bit of a minefield but i will start looking into food now, I am not going to change my diet too much just now as i want the blood tests in a couple of weeks to show an acurate result. I will post the results when i get them.

Thank you :bye:
Diagnosed HMS 2009.
Son, 18 diagnosed 2011.
Endometriosis
Osteopenia
Diverticular Disease
User avatar
wobblywoo
Member
 
Posts: 121
Joined: Sun Nov 30, 2008 12:47 am
Location: Derbyshire

Re: IBS

Postby gillycharlie32 » Thu Jun 09, 2011 7:29 pm

Just had to add a note to this IBS thread. Having spent the last 4 years trying to sort out diets, food intolerances and all the physical stuff that goes with it I hassled my GP for GF foods on prescription only to be told that as I am not coeliac then nothing could be done. Diagnosed with gluten intolerance via both dietician and re-trails over the last two years!

Finally, today I received news that EDS (JHS) and gluten intolerance are at last being seen as co-morbid (very often occuring together) so if you are living better by being gluten free, prepared to retrial it under the watchful eye of a dietician (you should be able to ask for one through your GP) and 'show' that you cannot tolerate it then remind the GP that new guidlines have just been introduced to allow for GF foods on prescription for us poor 'gut dysmobility' folk.

If in doubt ask for this to be checked against Dorset PCT who have most certainly changed their policy!

Gilly
gillycharlie32
newbie
 
Posts: 21
Joined: Mon Sep 20, 2010 6:06 pm

Re: IBS

Postby Eloise » Fri Jun 10, 2011 9:08 am

Gilly - are you able to send a link to confirm that this is national? All my sources still say that the national guidelines are that gluten free on prescription should only be for coeliacs confirmed by a test. It would be useful to have something to show GPs. (and my local PCT who have VERY strict guidleines).
Benign Joint Familial Hypermobility Syndrome (BJFHS) - Confirmed Prof Bird April 2008 :)
I am a Pharmacist and I will give my opinion on these boards. However, always ask your own health professionals for your individual circumstance.
User avatar
Eloise
Carpal tunnel
 
Posts: 1377
Joined: Fri Nov 09, 2007 10:42 pm
Location: Mansfield

Re: IBS

Postby madmum » Sat Jun 11, 2011 10:20 am

Just a quick update. My son is much better. Only occasional bouts now. He is lactose intolerant again,the consultant said due to his hms he will continue to have lactose issues on occasions throughout life. He is doing well on his dairy free diet again. At least he is old enough to understand now.
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
User avatar
madmum
Carpal tunnel
 
Posts: 2303
Joined: Wed Feb 17, 2010 11:20 pm

Re: IBS

Postby Retro » Sat Jun 11, 2011 2:59 pm

I didn't think intolerances could come and go :S IBS can (dependent on the cause) and stress is a major factor in mine.

Lindsey
...all the knowledge in the world is of no use to fools... ~ Long Road Out of Eden ~ Don Henley, Glenn Frey, Timothy B. Schmit (The Eagles)

Diagnosed with HMS 22 February 2006
Diagnosed with CFS/ME October 2005
User avatar
Retro
Site Admin
 
Posts: 3577
Joined: Sun Sep 25, 2005 9:00 pm
Location: Invergordon, Scotland

Re: IBS

Postby Eloise » Sat Jun 11, 2011 4:51 pm

I think your right Lindsey - if you have an intolerance then you are always intolerant. However, IBS has many contributing factors, so this can make symptoms of the IBS/intolerance much worse if they are combined. i.e. perfectly healthy and no stress you can eat a some lactose (or what you are intolerant to) and get away with it. BUT when stressed/run down you only need to eat a tiny bit of lactose (or what you are intolerant to) and you are in a state.

So I would recommend for anyone who realizes they are intolerant to things, to keep them at a minimum. Also, don't try too many of things you are intolerant to at the same time, even if they are totally different types of food (i.e. lactose, fruit etc)
Benign Joint Familial Hypermobility Syndrome (BJFHS) - Confirmed Prof Bird April 2008 :)
I am a Pharmacist and I will give my opinion on these boards. However, always ask your own health professionals for your individual circumstance.
User avatar
Eloise
Carpal tunnel
 
Posts: 1377
Joined: Fri Nov 09, 2007 10:42 pm
Location: Mansfield

Re: IBS

Postby madmum » Sat Jun 11, 2011 5:02 pm

I thought the same thing but from 7 to 10 my son could eat dairy no problems. Now even a small amount of icecream sets him off. He was stressed when it was at its worse but looking back it restarted after a stomach bug. When i explained it to the gastroenterologist she said it was almost inevitable with his hms this would happen,rest him for 6 months then try him again. So far he can only tolerate kinder egg(made with skimmed milk) but not icecream or other products containing dairy. He is now electing to stay dairy free for longer.
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
User avatar
madmum
Carpal tunnel
 
Posts: 2303
Joined: Wed Feb 17, 2010 11:20 pm

PreviousNext

Return to Related Conditions

Who is online

Users browsing this forum: No registered users and 2 guests