Issues relating to disorders which are related to, or which may occur as a consequence of HMS. Including but not limited to: Ehlers-Danlos Syndrome, Marfans, Osteogenesis Imperfecta, Sticklers Syndrome, arthritis, depression, chronic fatigue syndrome. To include everyday problems such as IBS, eyes, teeth, etc.....
Moderators: gila, Blaadyblah, Rosie, Retro
by bendyneck » Fri Mar 22, 2013 1:15 pm
apparently ladies in France who use 'squat' toilets have far less pelvic floor problems as it is a much more natural way to stimulate the bowel to open without straining. I'm saying no more

migraines, fatigue, multiple chemical sensitivities, gluten and lactose intolerance, bursitis, ulna nerve pain, hypermobility, and possibly POTS.
Finally Diagnosed with HMS/EDS on 5th September 2012 by Professor Grahame
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bendyneck
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by Rosie » Fri Mar 22, 2013 1:18 pm
Hiya
Definitely true, and also a reason why men tend to have less bowel probelms than women (generalised comment) as they have longer lower legs, so when seated on the loo their knees are automatically higher than their hips. Gentle rocking can also help.
Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Rosie
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by paige » Fri Mar 22, 2013 7:15 pm
I now have a footstool in the loo to put my feet on. Your knees should be higher than your hips. Lean forwards and put elbows on your knees - this is the correct position for you to be in when sitting on your throne.

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paige
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by Fluffym » Sat May 18, 2013 1:15 pm
Hope I've found the right place to post this question.
I am wondering whether any of you suddenly feel very nauseaous several hours after you've eaten? I've also found that if I eat anything particularly high in fat that a short while afterwards I come over all clammy, feel a but dizzy and think I'm going to throw up. Does anyone else get this? I'm guessing its something to do with irritable bowel or autonomic problems. Do any of you have a likely explanation.
Cheers ears
Fluffym
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Fluffym
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by Rosie » Sat May 18, 2013 7:52 pm
Hiya
Yes, nausea after eating can definitely be part of IBS, I also get cold and clammy when I get the bowel spasm pains. I have now linked this with a drop in blood pressure, according to my GP this is usual when in acute pain.
IBS can be triggered by different foods for ondividuals, I have never been able to link mine to any particular food though. The pain and nausea I had from fatty foods turned out to be gall stones!
Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Rosie
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by PhoenixRising » Sat May 18, 2013 9:29 pm
I have recently staretd getting random bouts of nausea. Different from the nausea/ stomach aches, and the nausea/ travelsick/ dizziness I am used to. A few times I had rushed to the bathroom tfeeling I was about to throw up.
On a different note- I've this week started taking psyllium, I haven't noticed a change yet but am only on 2 tsp a day so far. I have a less common issue for HMS IBS and go about 6 times a day, the morning rush is particularly inconvenient and I am hoping it'll help. Was more like 10 times a day until I stopped gluten.
HMS (diagnosed Feb 2012, aged 38): food intolerances incl gluten, allergies, asthma, IBS, GERD, RLS, hypoglycaemia
"Feelings come and go like clouds in a windy sky. Conscious breathing is my anchor." Thich Nhat Hanh
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by Fluffym » Sun May 19, 2013 2:00 pm
Thanks Rosie and Phoenixrising,
Although it's horrid that you suffer like this with nausea, and I wish you didn't, it makes me feel slighly better than I am not alone!
Rosie, I'm sort of hoping that my autonomic test show a drop in blood pressure when I feel nauseas as at least I would have a medical explanation for sure. Saying that if there is nothing that can be done then what's the point? Hey ho will wait and see.
Fluffym
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