hair

Issues relating to disorders which are related to, or which may occur as a consequence of HMS. Including but not limited to: Ehlers-Danlos Syndrome, Marfans, Osteogenesis Imperfecta, Sticklers Syndrome, arthritis, depression, chronic fatigue syndrome. To include everyday problems such as IBS, eyes, teeth, etc.....

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Re: hair

Postby Lou661 » Sat May 28, 2011 5:05 pm

Got really fine hair here but no greys yet as far as I've noticed,mind you my hair has been everycolour under the sun since I was 14 (33 now, and it's a lovely red...for now) so don't think I'd have noticed the greys.

What gets me confused is my hair is a hipocrit. It's too fine for most clips etc (although after 3 days of no washing the eventually stay, but greasy hair is not attractive) and they slide out like most of you but at the same time it gets knotted at the drop of a hat. Oh yes you can let the lovely hair grips slide out but you can't let yourself slip out so I brush ten you knot and break...start co-operating :cussing:

I also remember getting perms in the early 90s,had to have them poodle tight or they just wouldn't stay so I'd go about looking like crystaltips for a fortnight while it settled down to a nice manageable curl which lasted for another 6 weeks before the frizz set in. I have now given up on styles and hairdressers, "oh you'll damage your hair colouring it that much, "touch hair," oooh it's so soft, what do you use to keep it in such good condition ?" nothing but if you know of anything other than a full tin of hairspray that'll hold it in a style other that "ratstails" I'd love to know about it.
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Re: hair

Postby lovelyfullauren » Sun Jun 05, 2011 12:27 am

Yep, I have loads of these problems too! I lose so, so much hair and can actually gather up a handful of it as it fall out in the shower... And those random grey hairs are weird! I've been getting them since I was 16/17 and resort to pulling them out, because my hair's curly and they're really noticable. Does anyone else find going to the hairdresser to be a problem? I get really uncomfortable tilting my head back for their sinks and hate sitting in those swingy chairs too, with someone constantly telling me to keep my head up/straight so it doesn't get cut all wonky. I'm really short so the stylist always pumps my chair up high, leaving my poor ankles to dangle. :(
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Re: hair

Postby wonkychick » Sun Jun 05, 2011 4:54 pm

I dont go to the hairdressers anymore. Got one who comes to me now so I can wash my hair myself. Really hurts my neck in those sinks & makes me cough badly & my throat really uncomfortable... this was long before I was diagnosed hypermobile, thought it was just me. I cant believe the amount of aspects being hypermobile affects!!
diagnosed jan 11 HMS, also carpal & cubital tunnel, IBS, raynauds, low blood pressure, migraines with aura.
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Re: hair

Postby PhillMc » Mon Jun 06, 2011 2:40 pm

Lou661 wrote:
I also remember getting perms in the early 90s,had to have them poodle tight or they just wouldn't stay so I'd go about looking like crystaltips for a fortnight while it settled down to a nice manageable curl which lasted for another 6 weeks before the frizz set in.



OMG i did exactly this! I had three perms all of which fell out very quickly, and one of which was so tightly curled the day it was done and i had to go to school looking like a prize poodle! After this disaster i never bothered again.
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Re: hair

Postby bendyneck » Sat May 19, 2012 4:44 pm

Me too, lots of hair but very fine and silky, also relate to the fluffy baby hair around the hairline which never seems to grow very long, people seem to think it is cute! I also have very thin nails, which of course are bendy!!
migraines, fatigue, multiple chemical sensitivities, gluten and lactose intolerance, bursitis, ulna nerve pain, hypermobility, and possibly POTS.
Finally Diagnosed with HMS/EDS on 5th September 2012 by Professor Grahame
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Re: hair

Postby teaspoon » Sun May 20, 2012 1:51 pm

this is so weird! i too have lots of very fine hair, plenty of greys at the ripe old age of 24, used a 30 wash navy blue dye that lasted for over a year when i was washing my hair most days. i have a really dry scalp too, but dandruff shampoo doesn't seem to help.

at the moment i can only wash my hair about once a week, but it seems to be coping much better than with a daily wash. i brush a little talc or dry shampoo through it mid week to take the shine off it, but it doesn't feel dirty. i miss my daily showers though :cry:
"Have faith" "I do. I also have fear, and a propensity to bruising." (H2G2)

Dx HMS in Jan 2011 by local rheumy, mum dx HEDS in Oct 2011 by Prof G. Dysautonomia with features of POTS, delayed gastric emptying, asthma.
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Re: hair

Postby jolajo » Sun May 20, 2012 4:33 pm

Yup, me too :) I have lots and lots of curly blonde hair (a bit of a trademark) but have also had comments all my life about how fine and wispy it is. True fairy hair! It sheds like mad and clogs up the hoover, however, so that's not so good. My hair ends up EVERYWHERE. My friends have come to me in the past saying "er, I found one of your hairs in my trousers...after I washed them..." lol. I'm a trainee teacher now and I keep seeing my hair make it's way onto the kids uniforms and books- that's definitely not good!
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Re: hair

Postby Smol » Mon May 21, 2012 1:14 pm

and me!... looks like fine soft hair is yet another HMS/EDSH trademark. Mine is like baby hair, my mum's is even finer and her sister's is even finer than that. another coincidental family trait that just happens to affect those of us with HMS.

Have to say my hair is my comfort blanket. I must annoy everyone around me as I'm constantly twiddling it
Sarah

Finally diagnosed 6/12/11 with HMS, raynauds, Cervical Spondylosis (3 prolapsed discs and bone spurs) Bulging lumbar disc and SI dysfunction.
Blog here http://hypermobilitysyndrome.wordpress.com/
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Re: hair

Postby loosebones » Mon May 21, 2012 4:40 pm

Does anyone else have hair that falls out constantly? My carers are amazed at how much hair is all over my flat and it just comes out in clumps. I know anaemia can cause it and I am anaemic but it just seems silly quite how much hair is falling out
"Just when I got my head together, my body fell apart".
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Re: hair

Postby nemonie » Mon May 21, 2012 5:28 pm

I shed loads of hair but still seem to have plenty on my head :lol: Even just running my hand through my hair will result in a load of hairs coming out.
Finally diagnosed with EDS-H and POTS after 20 years by the lovely Prof G \o/
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Re: hair

Postby BendyBoff » Mon May 21, 2012 8:56 pm

My hair used to fall out a lot and being pregnant was great because I lost hardly any for nine months! It is now making up for it and I am constantly cleaning my hairbrush or unclogging the plug in the bath! What I hate most is when I'm washing my hair and strands get stuck around my hands, eugh!

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Re: hair

Postby jolajo » Mon May 21, 2012 9:08 pm

Yep mine falls out all the time, but again you'd never know it, my hair is a cross between candy floss and a lions mane! It gets stuck in everything, including a massive floral display in harrods tea room...
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Re: hair

Postby loosebones » Mon May 21, 2012 9:11 pm

bendyboff that's what I hate...especially putting the anti frizz conditioner in - it just gets tied up in my fingers and I end up flapping my hands to get rid of it which ultimately ends up with me dislocating both wrists (I never learn)

jolajo...how on earth did it get stuck in a floral display at harrods?
"Just when I got my head together, my body fell apart".
"I think I have a problem with my joints..."
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Re: hair

Postby BendyBoff » Mon May 21, 2012 9:16 pm

LB - I'm glad it's not just me that does the flappy shower dance in an attempt to get the hair off my hands!

Jolajp - you can't leave us with just that, we need details about your hair vs floral display experience!

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Re: hair

Postby jolajo » Tue May 22, 2012 12:20 am

Haha!

Well, it was on honeymoon in London last year. I was walking back from the loos (trying not to fall over or do anything silly in such a lovely place) when I wobbled sideways a bit and one of my curls got stuck in a massive flower display as I went past. I didn't realise and carried on walking, tightening the knot of hair in the flowers! Luckily it was all stuck on to a permanant pillar, so it just pulled ME backwards (cue comedy head yank and stumble). Had to stand there and untangle myself, much to the amusement of my husband who was laughing from across a crowded room. The perils of having long flyaway hair and terrible co-ordination/lack of balance!
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