we are going back to gosh for becca's check up at beginning of june
whilst there myself and my 6 yr old are having a private appt with prof G at hospital of st john and st elizabeth
my hope is to get my 6 ur old on the 2 weeks course at gosh with her sister as this would save 2 different travelling times if you know what I mean?
would prof G be able to get her on the course without seeing the staff at gosh first? or does she have to have an initial appt at gosh before she can do the course.
my 6 yr old is very bendy and still needs carried and is in tears every day climbing the stairs to bed.
also I am pregnant, so its a lot of work having to go back all the time. If we only had to go once and killed 2 birds with one stone so to speak, it would make things so much easier.
also - because I am pregnant i will have to put off any appts towards end of this year beginnning of next.Do youthink they will be ok with this?
also it means there will then be 6 of us coming down. I know sue said it was ok for me to bring all kids and myhubby cause I am his carer and onlyone who can look after the kids - would they still put us in the flat at patient hotel? there is only 4 beds plus 1 cot? do you think they would give us a spare mattress so we could all stay together?
Mandy - DX EDS III by prof G June 2009
mum to Rachel 9-DX EDS III by prof G June 2009
Rebecca, 6, DX EDS III nov 2008, GDD, selective mutism, PDA
Charlotte 3- EDS III DX 2010
Louie 2- showing signs
Also carer to my husband who has narcolepsy + cataplexy