sorry to hear about your mum.
I have no problem with people treating themselves - life is hard. My husband and I started smoking as we are so stressed just now - numerous problems - he cant work as he has suspected narcolepsy, I am his carer and rebecca's and I have 2 other kids to look after. We have limited money etc etc.
BUT we never smoke in front of kids - only 1 a night if that and only when they are all asleep.
I had a big problem with my mum drinking so much when in london cause we were on a very very strict budget and she doesn't understand that thatmoney could feed you for next few days (they too are going through serious money probs but it hasn't hit them yet) , learning to stick to a budget is hard and it takes a long time to get used to, but once you are used to it you really cant treat your self - well I cant - I fiond when we do have extra money we feel like we cant treat ourselves if you know what I mean lol?
anyway - school is only for 1 hour and they get taken straight there by the physios - you pick them up at the school bit.
it's just fun stuff - dont actually think it's proper schooling - they have cookery one day, painting next stuff like that
I am still considering home schooling, but luckily the head mistress at rebecca's nursery and primary has been so nice and they have accomodated all our problems so I haven't got any worries yet. I do agree it's too much forlittle ones. I feel so sorry for rachel as she gets so tired plus we think she may have eds too but lesser than becca. If she experienced any probs I would take her out no questions.
I hate being away from my kids lol
Mandy - DX EDS III by prof G June 2009
mum to Rachel 9-DX EDS III by prof G June 2009
Rebecca, 6, DX EDS III nov 2008, GDD, selective mutism, PDA
Charlotte 3- EDS III DX 2010
Louie 2- showing signs
Also carer to my husband who has narcolepsy + cataplexy