I seriously need some help with our son Ben (he is now 7 years old). I have posted before about having problems trying to get him to do his physio exercises and things are much worse
Since the last time I posted Ben has also been diagnosed with Sensory Processing Dissorder and is on the referral for an autistic assessment (they are not sure whether all of his behaviours and problems are due to Sensory processing or possibly autism). He is currently seeing a specialist OT for sensory and a clinical pyschologist for ASD/behaviour problems.
We have major problems with his behaviours, anxiety and temper tantrums. We have tried all the 'normal' ways of dealing with behaviour problems but nothing has been successful. We are still waiting for his sensory diet from the OT, which hopefully we will be getting in the next couple of weeks.
Anyway we were back at GOSH a couple of weeks ago (been going since he was 5) and his muscles are not great and that is why he is getting loads more pain. We have really struggled with his physio exercises since he was last there about a year ago. So GOSH have given him 2 new exercises as well as the 4 he was already supposed to be doing. The 2 new ones including weights again as the weights were stopped last time we were there. The problem is Ben is refusing to do them as he complains that they really hurt. We have tried everything from behaviour/reward charts to bribes to discipline - nothing works! Even when we can get him to do them he does them wrong as he doesn't want to do them.
Ben has total meltdowns, cries, shouts, throws things and becomes abusive etc. (Ben has these behaviours most of the time due to his Sensory problems etc.) These meltdowns also last for ages, the one today was for about an hour and we still didn't manage to get him to do them
I know that he has to do the exercises as they are his best chance with regards to his EDS but, with all of his other problems it is proving almost impossible - PLEASE HELP!!
I would be grateful for any advice.