DD is 4 and I suspect that she has inherited my HEDS. I know that she needs to be 5 for a referral to GOSH, but I am wondering if she would fit the other criteria.
She is under a paed for suspected Aspergers, and not due to go back until next February. When I mentioned my dx at her appointment earlier this month, the paed checked her over and said that she has very soft skin, but she has seen children who are much more hypermobile (whatever that means).
She has needed heel cups since she was 2 as she badly over pronates, and has recently had to have extra angles added to them. Her podiatrist says she also has femoral anteversion. Despite the heel cups, she still gets knee pain when she walks, and she is quite unstable on uneven ground and steps etc. It took her 6 months to walk unaided from cruising. Her elbows visibly hyperextend, and her thumbs touch her wrists. It's difficult to say whether she gets tired easily as she has a lot of sleep issues.
AS, HEDS, probable POTS, IBS, chronic pain syndrome, chronic migraine with perpetual aura, A&D, atopy