Just wandering if anyone has any experience of seeing Sue privately at GOSH?
This might be an option for us - When rebecca has her check ups at GOSh I could pay privately to get Sue to see Rachel at the same time
I would never be able to afford to pay for the 2 week rehab for Rachel though as it's too much money (unless I win the lotto)
anyone done this?
Mandy - DX EDS III by prof G June 2009
mum to Rachel 9-DX EDS III by prof G June 2009
Rebecca, 6, DX EDS III nov 2008, GDD, selective mutism, PDA
Charlotte 3- EDS III DX 2010
Louie 2- showing signs
Also carer to my husband who has narcolepsy + cataplexy