We are still waiting for Lili-Mair's pediatric rheumy appt in Cardiff to come through(since september 23rd!!!) and when I spoke to the appts line they said that the dept has a 26-28 week waiting list so we should hear something soon.
In the meantime I have been told that the dr she has been referred to is highly unlikely to refer Lili to GOSH (from their personal experience)and I wondered about going privately. But I have many unanswered questions even after all my digging about the threads lol
How do you get a private appt? (Baring in mind we are in Wales not England)
I have read in various threads that people have paid for the first appt then have been seen after on the NHS. How does this system work?
Is it very expensive? We are not rolling in it(is anyone? lol)but would be able to scrape the money together if it was just for a one off.
We are getting absolutely nowhere locally with anything other than orthotics but even he can't give her the wrist/thumb braces he says she really needs but the referrals to OT keep disappearing within the system
so I really would like her to be seen in GOSH.
Answers to even one of these questions would be wonderfully helpful lol