We are waiting for official response from the team at GOSH. But it isnt really surprising news as until fairly recently children werent diagnosed consistently with HMS before the age of 7. When we say consistently, I mean our own medical advisors felt uncomfortable with diagnosing children as young as 7 but it has gradually become younger and younger.
As you all know children are extremely flexible anyway, some of this flexibility disappears as they strengthen and grow, those who suffer from chronic pain everyday are the children that need to be assessed and treated as soon as reasonably possible. It is also well known that GOSH has been receiving a lot of referrals for the clinics and despite running extras they still have waiting lists of several months.
I know that I am no longer suggesting people are seen in Leeds, but suggesting referrals to GOSH so if lots of people are doing the same then it means that strategically the clinic would be unable to cope. However as we said we are waiting for the official response.
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia