I went to my appointment with someone at the hospital yesterday, and Iâ€™ve got to say, I was pleasantly surprised. He asked me lots of questions, did an examination of my entire body (despite only initially being referred to because of my knees/back). I brought up the subject of Hypermobility, and he agreed and said of course it could be an explanation for all my pains. I was really surprised, as after all your horror stories of less-understanding doctors, I was getting really nervous, worried heâ€™d think I was being a bit critical and over the top. He examined me, did lots of â€˜bendyâ€™ tests and was stretching and poking me left right and centre.
Heâ€™s sending me to see a specialist rheumatologist, and to see a podiatrist to get me some insoles to help with my walking also. I just could not believe how helpful he was. He said the next step is to be tested for other things, like auto-immune diseases, surprisingly though, he said this would probably come back fine, but theyâ€™re just precautionary. So fingers crossed, something, whatever it is could get to the bottom of it.
I was also told by my physio later that day (after heâ€™d already mentioned it), that hypermobile people are somewhat weaker anyway, but due to my other condition, I have further weakness, to the extent I can barely support and keep myself upright as my back muscles are too weak, and causing them to spasm. Iâ€™m beginning hydrotheraphy soon, and theyâ€™re hoping thatâ€™ll start to exercise more of my body, without injuring it.
The only thing which confuses me is the fact Iâ€™ve always had lots of little niggles and pains, but never really thought much of them. But suddenly this summer it all got much much worse, and very quickly. I am currently deteriorating day by day (the physio has slowed this though), and my tiredness is getting worse. Did any of you guys find you suddenly got worse very quickly too? I mean, three months ago, I was achey, but â€˜normalâ€™, and able to get on, walk around and stuff. Now, I canâ€™t get out of the house, weâ€™ve had to rent a wheelchair so I can go out, and canâ€™t walk without my crutches .
Would be good to hear from you again! Please excuse yet another essay