Thanks eloise, tho daughter is on desomelts at night and they work, they are thinling of putting on her on amitriptyline as well for pain etc. The oxbutlyin that she takes in the morning are less effective but gravity and activity would also have something to do with this.
She is under the nurse and physio for help, but I think she will probably get the most help when she is in GOSH for two weeks. She has just had a scan which confirmed it was def irritable bladder rather than stretching bladders etc which I think is better.
I would be really interested in reading your research on this Eloise.
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia