I am seeing a surgeon at St Barts on Monday to discuss the full thickness biopsy that I am having in March. I know it involves key hole surgery and removing (obviously) a full thickness sample of tissue. I'm not entirely sure where fro though.
Alot is resting on the result of this biopsy- and not just in for the doctors. The GI doctor is trying to rule something out that is serious, not sure what though.
I have been waiting for immunotherapy to treat my autoimmune condition.However, if this biopsy if positive for something then I can't have it. Aparently it would mess my whole body up or something. Everything seems to be connected and i makes everything complicated. They have to be careful what medication I have, what tests they do etc
But I REALLY need this immunotherapy. If i can hae it it will be IVIg and a plasma exchange. For the plasma exchange they put a cathater in y neck to take blood out and one in my arm to put blood in ad the attempt to remove the antibodies from my blood. There is no certainty that it will work but I need it to. This autoimmune condition messes up my life. 2 years ago it let me paralysed. It makes y whole body shake, I can't control my muscles, affects my brething etc
If this plasma exchange can help to control it, my quality of life would be improved so much. I would be able to go throgh a day with out wondering what is going to happen next, be able to communicate with people better etc.
Even if I can have the immunotheraoy it may not work. I may go through it all and come out the other side and it has not worked. There are side effects if the treatment aswell. I am willing to try though- I need this. I a due to start university in september and really need someimprovement.
Sorry, this seems to have turned into a rant, it is just that so much relys on this biopsy and I am scared about the outcome.