I got a bit confused and had to look gastroparesis up. However it looks like that is one of the bits they mentioned as they want to do a stomach emptying test on me alongside the endoscopy, colonoscopy and barium meal and enema to check nothing else nasty is happening to my insides other than what they said were symptoms they are now see lots of folk with H/EDS displaying.
I'd been vomiting and having severe stomach pains since I was a small child alongside all the other symptoms of "IBS" which went manic when I hit puberty. My mother decided I was making it all up so i got no treatment for my childhood. I decided I must have Bulimia after a few months of wanting to make myself sick after eating and that was how i treated myself as i also felt the need to binge. Doctors I saw during these years finally diagnosed IBS when i was 19 after the first episode of spending an entire night crying in pain in the bathroom with diahorrea. Later on I was treated for clinical depression (but with no reason found right up until my bendyness diagnosis, lol). I leapt at the chance to see someone about all this as my poor aunt had similar probs and had to have a foot and half of major intestine removed when they finally believed there was soemting wrong and took a look when she was my age. It looks like she has what i have now- oh what a shock
my family aren't "getting" the hereditary thang.
My symptoms, Gila, consist of repeated abdominal pain (severe tenderness all over lower abdomen, with features of allodynia), constipation and diahorea, bloating (up to five or six inches at times) and vomiting since early childhood.
Food sometimes just "stops" for days at a time. I can't go to the loo and swell up with crazy gurgling sounds and food just sits there not being digested at the stomach end. Often this results in my throwing up with sweats and the stomach cramps resulting in severe toilet visits which can be sudden and last hours ( I keep a glass for water in the bathroom so i can rehydrate- sad, but useful). I feel faint when i need to "go". My breath is embarrassinbgly bad. I need to keep clothes for big days when i am swollen out of my normal range, so i have a few pairs of size 18 trousers (instead of the usual size 8 waist). Its highly stressful having constipation which creates an upset stomach, but I think I understand now that a blockage creates a build-up of nasty bacteria- that explains the "fermenting" feeling i'd always get as the bloating ensues. If nothing is moving further down then nothing can got through and i also feel like stuffing myself; possibly a n attempt to push things through my system? but also, if there is a bacteria imbalence then i believe you can't get the nutrients you actually need from the food so maybe this makes you want more.
This would all link to the pan gastro intestinal dysmotility which has been mentioned in my notes as being common in EDS patients because of the lax connective tissue!
So... I'm being treated with a stong antibiotic followed by a scary strong probiotic (these seem to have had some positive effect already but it takes a long time) and i've got some laxatives to use along with the Motilium (I think that is what others on here are taking) to stop the being sick so much. Might not be able to take that last one any more as I already had lactation before i started it (have had for 10 years now) and I'm sacared of aggravating that as its so much extra discomfort.
I'm very interested by the idea of liquid foods for worse patches! (if it gets too bad I can't hold water down which frightens me, so i'd like to head it off). I have found huge amounts of peppermint tea very useful as a genearal tonic and was taking multi-vits with probiotics before i went on the stronger stuff too, having done my own research and heading in the right direction. They both helped me with the milder everyday symptoms. Highly reccomend it- Yay!
Sorry guys- that is a really long reply. Wikipedia is great for medical terms explanations