devon_guy wrote:Well I'm back! I arrived and he called me in. He had absolutely no notes or my referral or anything, despite my having been assured he would be handed them in person on Thursday. So he had nothing to go on or start from. However he asked me tons of questions, examined me and concluded I do indeed have EDS III which was a mighty relief, I was scared he was going to say nothing was wrong with me.
We also looked at my other symptoms which I had brought with me and he thinks I may have a problem with my autonomous nervous system and have been referred to a Prof Matthias at St Marys Hospital Paddington and will apparently have to go up there for a few days for tests. He did seem a bit rushed and flustered and sometimes a bit short but on the whole was a nice man and it was worth the long (11hr) journey to have confirmed what had been suspected which is a mighty relief.
Just have to sort out my autonomous nervous system now!
Sorry for dragging the old post back but I thought this was very helpful.
I too, am due to see Prof G privately, at the end of this month. What worried me was, his secretary didn't answer all of my questions (there weren't many but relevant ones such as "Can I send you some letters written by other doctors and forward some relevant test results available so far in advance to you"?). She didn't say either yes or no. Quite strange.. I took her silence as NO. I hate it when I would be placed in a situation where it makes me feel like "I ought to know better, sorry I had to ask, to a brick wall...". I'm no mind-reader, I CAN tell you.... She could have just said NO if that wasn't possible. I take it this is quite common with those teaching hospitals which haven't got enough resources dealing with patients in that administrative level? Secretary isn't prepared to do additional work for Prof G's private patients at another hospital by the sound of it..(?) I try not to take it personally. I know some of these medical secretaries aren't very good with communication with patients (some are, mind)
This post clarified me that busy Prof G won't be looking at background info of each patient in advance. I don't think she (his secretary) meant badly but it could have been slightly better (room for improvement there?). We aren't too sure re. availability of disable parking either. It's a bit OTT knowing there aren't any disabled parking for the disabled in 21st Century unlike dark ages??
Knowing this a private hospital, it does not provide a disabled car park for patients...I'm even doubly shocked as not all patients are able bodied, yes? Certainly, the hospital doesn't seem to be making concessions for the disabled. Of course, I'd stand corrected if that isn't the case.