definitions: Subluxing/dislocating joints

Appointments generally. Getting the correct diagnosis, finding the right doctor or dealing with the issues arising from being diagnosed with a hypermobility related disorder.

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Postby firefairy » Mon Apr 24, 2006 8:50 am

ooo could it be that sacroilliac joint thats causing me problems when all my hips and back hurt and I cant stand still for long at all or with my legs down on a chair (get real funny looks sometimes because I avoid sitting if I cant get my legs up and I cant stand still so I have to pace) or it gets real uncomfy and I cant stop kicking my legs.

Also does anyone else have their knees get real stiff or have to pop their knee kap back if they sit on a normal chair, sofa etc for too long
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Postby Retro » Wed Sep 05, 2007 10:37 am

Subluxing/Dislocating is also discussed here

Topic bumped up to sticky - Site Admin
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Postby Eloise » Wed Nov 28, 2007 12:33 am

Hope this is the right thread.

Just want to say ARRRRGGGGHHHHHH - my right hip is still not properly "in joint" has been in and out since thursday.

I once got told the difference between a sublux and a dislocation was whether you could put it back in yourself! (No idea whether that is true) I put all mine back in - well sort off.

Some I physically clunk back in - more the smaller joints, like toes and fingers where I pull them apart and back. And some of the others I just keep rolling them around till they find their own way back in.

I am glad to have read on here that other have had neck/spine subluxs. Just at the base of the neck as you get level with the shoulders - that joint there is sometimes very far pushed out and feels "wrong", then moves back again.

My wrist also feels like it is falling off. there is about an inch step down from my wrist to the hand - esp at the little finger side. And I can use the other hand to move it back up (which also relieves the aching).

My knee caps used to twist round and I had this appearing "lump" on my knee as a kid that disappeared everytime my mum got me to the doctor!

My shoulders sublux in my sleep - wake up with totally dead arms - always fun!

And my hips are the favourite - any position, anywhere they like to pop out. VERY painful. But when that happens - they usually pop straight back in again.

But then I get like I have had over the past few days - the neither in or out phase - which is very painful - but I can still do stuff (but with a weird limp).

And my party trick is that I hold my hands out and can click the base thumb joint the wrong way on both hands at the same time without touching them. Freaks everyone! (well probably not you lot)

Thank I have moaned enough now.
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Postby nat05 » Mon Dec 03, 2007 11:46 am

Hows your hip eloise?

i am for the first time experiencing a 'funny' elbow. it occurred on sat and just looked wrong. i follwed strict instructions from blaady and strapped it nd followed RICE. last night it made some noises nad the pain lessened, then i moved again and the reverse happened. am going to see a dr this afternoon but dont know what she'll say. she was the one who doubled my ami dose and declared the usual about paracetamol :roll:

i can still move it (and type just about) but have had a mixture of pins/needles, tingling an d numbness with the obligatory pain. its on top of hand mostly for pain so i shall take Sandy Ls advise and rememeer radial nerve is prob causing some of it.

oh well.
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Postby Eloise » Mon Dec 03, 2007 2:43 pm

Hi Nat,

Well actually at this moment in time I have nothing "out of joint" and the ache from my hip has subsided. It is just achy knees today :)

Hope your elbow feels better soon - keep up the paracetamol and RICE!

Take care
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Postby nat05 » Mon Dec 03, 2007 7:16 pm

Thanks Eloise. dr says its all in place now but to keep up RICE and go back if it happens again. hope your feeling all in one piece 2day.

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Re: definitions ; ? Subluxing joints

Postby mumto2girls » Sat Jan 12, 2008 6:13 pm

i am new here... so hi to everyone.

i was diagnosed, not officially, but was told that i had hypermobile joints. This was about 3 years ago. i have done some internet research i have discovered i have HMS....

but this is the weird bit...

through my research i discovered that i can easily sublux my shoulders.... or so i thought... now i have other ideas about what happens.

if i lean my forearm against an object i.e a table top and push my arm to the side, or hold onto my knee and pull, i have discovered (is that really the right word as i knew i could do that anyway?!?) that i can (very easily and with no pain whatsoever) het my shoulder to come out of its socket. after i let go of my knee or relax the pressure on the table i feel the joint go back in... this is what i would describe as my join 'half-dislocating' a couple of days ago i discovered that this is what is called subluxing.... then i found this forum.. read this discussion and then wasnt sure...

can anybody tell me what this is acutally called? as in is this what i think it is??/.. because i am confused... but love this forum... it has been a great help and explained a lot to me...

thanks

jez
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Re: definitions ; ? Subluxing joints

Postby Shadowlady » Wed Feb 06, 2008 12:59 pm

Hey Jez,

Welcome to the boards! We have a section called 'introduce yourself', if you start a thread in there to tell us a bit about yourself, we'd love to welcome you to the forum!

I'm not 100% sure whether it'd be better described as a sublux, or as a 'Sulcus sign' (have a google ;)), but I think you'd definitely be better off not getting into the habit of pulling it out!!! :) You could stretch yourself out like that, make it worse. How are you at carrying shopping? My shoulders first started coming out when carrying shopping bags, and when standing on the bus and holding on - every time the bus jerked about, my arm would clunk out :roll: . It didn't take long before my arm appeared to be hanging out it's socket simply with it's own weight. I had physio to build up my rotator cuffs, and now my shoulders sit very nicely in their sockets and it takes a lot for them to be troublesome - I have this way of holding myself and tensing my muscles when doing stuff so I can deliberately hold them in. Exercise is massively important! If your shoulders are troublesome in any way - get yourself to the GP with some info print outs (see getting a diagnosis threads in this section) to get yourself to the physio to get the exercises to keep your shoulders working well. If they're troublesome - sooner rather than later is much easier!!! Defiitely worth trying to avoid future problems with plenty of exercise!

Best wishes,
S
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Re: definitions ; ? Subluxing joints

Postby sarahh » Mon Feb 25, 2008 7:42 pm

Hi Jez welcome to the boards, The site is full of info and really supportive people. It could be a subluxation or the other thing that Shadowlady said.

Take care

Sarah x
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Re: definitions ; ? Subluxing joints

Postby Suze66 » Sat Mar 22, 2008 6:57 pm

:( For me it's a sharp, 'catch me off guard pain'...Then followed by a sore thumping ache in the joint - which, (for me) lasts about a minute or so & makes me feel generally low & depressed.

It happens when doing the most basic tasks & even if I raise my hand up too fast...almost like a cartoon.....Raise my hand & my thumb follows seconds after...subluxing as it goes :cry:
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Re: definitions ; ? Subluxing joints

Postby Helly Welly » Thu Mar 27, 2008 4:32 pm

I don't think i've ever dislocated or subluxed a joint. Sometimes when trying to kneel, my knee won't bend all the way and is extremely painful, as if it isn't quite in the right place. I just stand up then try again and its usually okay. Is this subluxing?
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Re: definitions ; ? Subluxing joints

Postby hannah » Thu Mar 27, 2008 4:45 pm

It is hard to say helly.

I have some joints that I think are behaving perfectly well, only to find they are on a minor subluxorama. Other joints can completely stick and it isn't sublux with the bones comeing out of place/line it feels more like ligaments/tendons stopping running smoothly/getting caught.
Other times I can feel something 'clunk' back in which causes echos along the adjacent bones. These are definitely subluxes for me, although I only properly worked this out when I realised I could roll my little fingers visibly out of socket, let go and they ping back in with this peculiar sensation that I now can recognise in other joints too.

However, subluxes son't really worry me now as I am gradually getting used to life with HMS as I use them as markers for 'you have over done it' 'remember to do your exercises' or 'that was a stupid thing to do sunshine' things. And I use the 'sticking' that I don't think is subluxing in the same way. In my head it is 'bendieness' and therefore needs to be managed and healthy movement encouraged. I also have learnt that if a bad sublux hurts, then splinting it for a couple of hours can be really effective in pain management and reducing long term pain and speeding the return to normal use.

Well.... that is the idea anyway, and what I'm working towards :shifty:
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Re: definitions ; ? Subluxing joints

Postby elanna » Fri Mar 28, 2008 2:31 am

There are 2 different types of this 'out of jointness' thing for me also....& it's different for diff joints -
1 - temporarily 'moves out of joint', slight knocking, goes right back into place; after-effect is stiffness in the joint (for me - happens in my fingers)
2 - moves out of joint, and stays out of joint for days & days... no stiffness, but feeling like it's out of joint, w/some pain & sometimes nerve pinching, range of motion is not what it usually is. (for me - my shoulders, hips, jaw)

Also a 3rd type - a minor thing:
3 - joint feels like it's in a cramp until I 'crack' it (little toes on one foot).

How do you get a hip to move back in place? (With shoulders, I can rotate my arm now & then, & it eventually finds its home. With my legs - I'm just afraid to do this - the joint seems much more loose.... hip is scarier somehow....
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Re: definitions ; ? Subluxing joints

Postby Retro » Fri Mar 28, 2008 12:54 pm

Hi Eloise,

Don't do anything your not comfortable with but...I wiggle my butt slowly although this has been hampered by dodgy SIs now!

Lindsey
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Re: definitions ; ? Subluxing joints

Postby whyamihere » Tue Apr 08, 2008 5:13 pm

My subluxations never hurt, but putting them back hurts a lot! Most commonly, it's my wrists, if I put my hand into my pocket to retrieve my wallet or phone, a bone will often jump out of place, requiring me to snap it back in. This causes a lot of pain and a rather loud crack, which gets me some funny looks in shops. My elbows often go out as well, and won't straighten properly. To put them back I have to force the joint straight until it cracks loudly, which is often so painful it causes me to shout. My shoulders and ankles also sublux occasionally, and rarely my knees. Fortunately, I've never experienced a full dislocation, I can't even imagine how bad they must be.
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