I've just read back through the last couple of pages.
Ladybirdscot, I hope you get your mind put at rest re: the bowel problems & your family medical history soon xx
I got the same comment from my GP "no point referring you, they can't do anything anyway"
How do they know that if one, they've never heard of HMS & two, they're not the expert??! I know it's a long journey for you, but I would push to get seen at the specialist clinic in Glasgow; at least then they can point you in the right direction(s) for the help you need, & get more sympathy & understanding.
Leashy, thanks for the pm, & great to hear there's some hope in visiting Lincoln County!! I live in hope of following in your footsteps soon. Talking of which, there's a fantastic lady at the Lincoln Podiatry Clinic (NHS!) who does biomechanical assessments, & she's the one who's picked up on many of my joint problems, not just feet, and also the only one to even mention the Beighton score; mind you she went a funny green colour when I showed her my party tricks lol!!
What a wonderful, supporting, caring, understanding bunch you all are on here - I bless the day I stumbled across the website!