Until my sister got her diagnosis, none of us had ever heard of HMS, but things all seem to make much more sense since reading up about it....
information is power!!!
Eskimo-7 wrote: I am sending it off to our geneticist who tolde me that there was no such thing as Hypermobility EDS (and sadly he is the head of genetics at the Royal Chioldren's Hospital and is an Associate Professor whos "special interest area" is connective tissue disorders - oh dear!!!!)
Can't they sent him back to med school?
JoyfulGirl wrote:They told me that "HMS is not genetic", and "it only hurts 'cause you don't want to do it!!!"
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