Stone wrote:Hello, and welcome to the forums
Orthopaedic specialists are not the way to go for initial diagnosis - not only is it not really their area, but they tend to see everything as being cured by surgical intervention which can be very unwise for us! As you've figured out the right place is rheumatology. There's a list of the specialist hypermobility clinics on the HMSA website here so you can pick the one closest to you. Note that some of them only accept referrals from a consultant so you would need to see a local rheumatologist first.
Hopefully it's all set up on Choose and Book so you can just pick the clinic you would like and off you go. If not you can get your GP to do a 'manual' referral - it takes slightly longer, and they may protest a bit (they have to write them a letter) but it works just as well.
Good luck with it!
Gecko wrote:- So I called the surgery and was told this wouldn't work using Choose & Book because a London postcode had to be used (I am in Birmingham). BUT I could, I was told, have a referral straight to the clinic. Great!
- That didn't work either. I got a call back later to say that the GP had said it wasn't possible without permission from the PCT! This is apparently because it is outside of the area. I mentioned that I was sure Choose & Book entailed a legal right to visit any hospital in England, but just had the same thing repeated back at me.
So I'm pretty confused now. Is there anyone else out there who has managed to get a referral to the London clinic from outside of the London area??
jazzyteach65 wrote: However, he says I need to go to a geneticist to find out how severe it is and to see how bad the collagen levels are
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