Im currently in a rock and a hard place....
I was told by a rheumy i was more than likely hms but has to do bloods etc to rule out a few things. They all came back clear so i stupidly assumed having had both brighton and beighton tests done with high scores she would confirm my diagnosis which she hasnt and seems reluctant to do. I have seen a second rheumy who is no longer in the area and she also believed me to be hms but said she wanted to wait on test results. I knew nothing about the condition untill they told me and i have pointed this out to them .....
My physio has said it seems likely to be HMS but again wont confirm it in writing.
Im really struggling with work at the moment but cant do or say anything as i dont have a diagnosis. My knee bent backwards the wrong way after and excessive amount of trips up and down the stairs twice the second time nearly causing my college to throw up
My shoulder is subluxing and dislocating quite often and i have done my jaw twice in the last month. Someties my hip clicks and i get numbness in my toes.
I really cant afford a private appointment as im only barley working but dont qualify for any financial support (unless i get diagnosed)
Second opinions are limited. My surgeon said he new nothing about the condtion but didint think i was HMS and my knee surgeon didint want to get involved.
Any ideas were i can go from here ?