that is exactly what was said and done to me..
Part of me was hoping that you would come across something new. I stayed in for a few days for sleep tests involving being hooked up to an EEG and video-ed for over 48 hrs- minus the bits when I insisted on walking aound the hospital with a lovely black box recording brain activity. Apparently all my spasms and jerks were obvious on both video and EEG recording . Did they mention epilepsy? They tried to say I have some sort of un-identified epilepsy at one stage.
My nerve conductions showed up carpal tunnel, already knew I had ulnar nerve impingement anyway.
Have taking that drug as well. Not related to the above or my continued jerking/spasms etc but I used to have cluster migraines every month, now thankfully only now and again, which I hadnt said that now!
Oh well, at least you know you aren't alone, there are so many of us who have similar (in some cases identical) presentations, although I am still worried about the neck incident!
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia