How long should I wait before I know if it is working? I've been on it for a few months now and I've seen very little improvement. I'm having less faints but still a lot of near faints and am still tachy a lot of the time. The guidance from NHNN when I went to my appointment was I could titrate up to a certain point so I still have 1 more increase I can have. My follow up appointment isn't until July.
I need to get in touch with NHNN I think as I'm due to have surgery in the next few months and I need to find out if I have to come off it before I have surgery or if I'm ok to stay on it. Last time I had surgery it I didn't react very well to the GA. My heart rate was 185 when I was on the ward and my blood pressure plummeted so much they had to check it three times as they didn't believe the readings were correct.
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope