No i don't think you are necessarily wrong. In theory the later the diagnosis and proactive management then there is a higher risk of disability. Not all of it will be permanent but there is an increased risk of poorer healing and additional problems which may be more difficult to treat or manage. I.e. Regular elbow injuries may lead to impingement syndrome, treatment options are sometimes llimited due to poorer outcomes in our patient group for example associated with surgery.
Then you have to factor in complex psychosocial issues and the fact that a poorly managed long term condition carries a higher risk of additional long term conditions.
Does that make sense? I am a tad tired! In its purest EDS doesn't have to be disabling or progressive its everything else which gets in the way.....and some of us are more severely affected than others and/or we have other burdens to carry and/or different coping skills. It is a complex condition which can complicate everything else! X
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia