Have a look at page 21 of the Telegraph (monday 25th June) the HMSA has been quoted several times in an article on Joint hypermobility with Izzy Knight's story.
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia