Residential 2010

[sheppeyescapee]

ooh last minute question, is there wireless internet access there? Need to know wether it is worth me taking my laptop or not

Edit: Actually I think I've found the answer on the venues website laptop is coming

[Blaadyblah]

Yes, you'll need to connect in the coffee lounfge - it should work elsewhere after that (I'm using it, so it works)!

[Es*]

I'm running late... but I'm on my way leaving in like five minutes.

[sheppeyescapee]

Just wanted to post a quick thank you for all the hard work that was put in to running the residential, it has been of great help to me. It will take a while to process all the information and I'm looking forward to buying the dvd.

[WinonaLemonade]

i really enjoyed the residential! it was nice to meet so many people and you all had completely different faces and voices to what i imagined. thanks to whoever donated the flesh coloured wrist braces with the bar and the label that says latex because i'm typing with them and they're great.
thankyou to everyone that helped organise it all the talks were really interesting and hannah yours went really well .

[roqchiq]

It will take a while to process all the information

Me too, there was so much to take in - but it was great!

A big THANK YOU to all involved in organising it.

[nemonie]

I had a great time at the resi, although I possibly may have not paced myself very well. My legs were like a new born foal's today and I had the shakes really badly, but had to venture out into the pouring rain to get goats milk and food I could eat. I was good and mad the supermarket minions do my bidding though.

Those were my old splints Winona, only worn for 20 minutes before I realised they had latex in and carefully put them to one side. I'm glad someone is finding them useful. I got a groovy splint in the swap too, just need to buy the matching one for my other hand now.

Best be off for another restorative cup of tea. Mmm tea

[WinonaLemonade]

cool i wondered who's they were
edit: i was looking at those ball things for strengthening hands, because i used to have theraputy but it made my fingers pop and they were lower resistance, but i'd run out of money and now i've found them in a catalogue for a new shop thats opened locally, they're £2.99! and the low resistance one is pink.

[madmum]

Really enjoyed the weekend. Learnt so much and met so many inspirational people. Also got a wonderful neoprenr doughnut splint for my son and the large knife and fork. Both are a godsend,thanks to whoever put them in my son has stopped two maltracking episodes of his kneecap and can look forward to trying it to play sport. Never realised he struggled with a knife and fork until he said this weekend. Now i am going to hunt out a spoon and a second set for me! Thanks for the great weekend to all at hmsa,proud to be a member.

[poppy]

thanks for a great weekend had a brilliant time and learnt a lot like i need a referral for orthotics and really need a better wheelchair! thank you to everyone who bought cards that me and the members of the cross stitch club i go to made. i would tell you how much money the sale of them raised but my memory isn't working only complaint is the food, help yourself was ok for me cos mum just took me in my wheelchair to a table then went back for food but for those self propelling wheelchairs and those using crutches or sticks or wobbling around without anything to lean on it must've been difficult. also their was usually only one gluten free option and some of that was almost inedible. i know i probably sound like i'm really whinging but i figure if the next residential will be there its better to mention any problems in the hope the problems can be solved by next time. other than the food is was great oh and my possibly broken ankle/foot but only myself to blame on the ankle/foot

[lil_miffy]

thankyou for an amazing weekend. I learnt more about my hms (or should i now say eds) in 2 days than i have in the 3 years since dx.
Thankyou for all who donated to the swap shop. I noticed the wrist splints i donated went straightway which makes me very happy that someone is getting use from them. I got a sling and the other half of the wrist splint set that nemonie got. i too will be ordering the other half so we both got a set of fab splints for half the price! (i found it worked brilliantly as a night splint).

The food was an issue. The 'soft option' on sunday was rissotto with the hardest rice Iv come across! had to resort to babyt food kindly donated by carla. Maybe some soups and other liquid slop for the non-solids next time? (i cant complain though becuase i thought id be ok with food till i got there).

Other than that it was amazing. I would have liked more rest time between talks as i had to miss the afternoon on saturday and one of the sunday morning talks becuase of energy.

Sorry to poppy for contributing to the broken ankle by inviting her to play wheelchair bendy pool!

[Tabi]

I had The Best Weekend Ever

Thanks to everyone who helped organise it, and to all the lovely people I met Ooooooo and Nemonie for donating her ankle braces... which I've not really taken off yet

I had a fantastic time, and I can't WAIT for next time. I'll be bringing my newly-diagnosed EDS best friend

[sanguine_emma]

It was fab, thanks everyone who organised it. Wheelchair pool was fun (sorry you ran over your foot though poppy!), and it was great to have so many experts in one place. Highlight for me was seeing Dr Hakim for first time since he saw me at UCH years ago. It made me remember how he made me feel - so validated. Back then he looked at me, told me I definitely had EDS, it was quite bad, that it explained all the pain and other complications I had, that I would continue to experience problems all of my life because it was genetic and it was DEFINITELY not my fault. Then he said that I was doing a really good job of living my life and he respected me - I'll never forget that. At the weekend, he did a similar job of making the whole organisation feel proud of itself. It reminded me that we should all give ourselves a pat on the back - we're working with a difficult condition, in adverse circumstances, and we're making progress with odds stacked against us. We are good

The venue was good, though I know there were problems with food for some. There were so many of us in wheelchairs this time - it did make for big queues at the lifts to get up and down to coffee etc. And the stair lift required a non-wheelie to go up and get it down before you could get on it (thanks tabi ) I did wonder if maybe we could have coffee from some sort of trolley in the main meeting room?

Also, well done hannah for your talk, and the t-shirts, books, business cards etc. Thank you for everything

[Jess]

I must agree the well done to HMSA for the brillent weekend. The stairs did do me in. With the queing for the lift.
The food was brill but a little bit rich for my belly. The table legs did manage to get the better of my knee caps.

I have to agree the S-E about having a tea trolley brought up to the meeting area.
but will definatly fighting work again to be able to go again.

[Tabi]

Oh heck, that flipping stairlift.
First time on stairlift: "Wheeeeee, this is fun!! Wheeeeee!!"
Twentyninth time on stairlift: "Uhhhh" *pelvis falls off*