Hi guys, parent of a non diagnosed here. About 90% sure she has HMS and looking for a wee bit of advice. Did register for the forums a few days ago but it's took a wee while to get activate. We have an appointment at fracture clinic in the morning. Was hoping someone may be able to advise before then
Darling daughter has had problems with various bits and pieces popping out over the years, sometimes painful, sometimes just feeling a little sprained. When she was 8 she dislocated both ankles while springboard diving. Junior doc told her she would be in a wheelchair by the time she was 30. I was so shocked and angry that he said this to an 8 year old I didn't think to ask the big why question. Anyhoo. Throughout her teenage years, more pops in and out, without too many problems, a bit of pain, nothing unmanageable until she hit 20 years old. In June last year, the right knee dislocated. Visited A&E, got bracing, and awaited a physio appointment that never appeared. October, spiral fracture (not healed yet
) Then 2 weeks ago, a dislocation of the opposite knee while she was sleeping. Also been diagnosed as having Sciatica, wondering if this could be something to do with the HMS too. A&E have asked fracture clinic to check out all her joints tomorrow.
Now, my couple of questions are....
Is it worth me pushing to see a Rheumatologist to get a diagnosis?
Is it normal for a knee to dislocate whilst being asleep?
Does a fracture normally take this long to heal in someone who has HMS?
Sorry to bombard you all with questions. I just know I want to get her some help. More so with the dislocations. Pretty sure the fracture will heal (eventually hopefully, gone past 5 months already )
Thanks for any advice you can give.