AWAITING RE-HAB IN LONDON NEW MEMBER

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AWAITING RE-HAB IN LONDON NEW MEMBER

Postby annie 1 » Thu Feb 23, 2012 8:56 pm

hI everyone

new to the site but not to hms was diagnosed when i was 18 now 37. since i had my daughter in 2007 my hms has got worse constant back ache & fateigue. I was in a real bad place at christmas dont think i could of got any lower. Went to see profesor G & he has refered me for the re- hab program in London all though i live in the north west. He also thinks i could have pots as well so going to see yet another doctor in london regarding this. Could anyone tell me wot to expect at re- hab at stanmore london. I am alittle aprehensive about going as it`s a 3 week stay with out coming home leaving my daughter & husband at home.

would love to hear from anyone who is awaiting an appointmant at stanmore

Ann :bye:
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Re: AWAITING RE-HAB IN LONDON NEW MEMBER

Postby gila » Fri Feb 24, 2012 10:09 am

hi and welcome :D

have a look at this thread
viewtopic.php?f=11&t=3051
the last 4/5 pages are mainly about the new rehab at stanmore (there s also a link to a blog about someones experiences of the current program)

to get the best out of this forum, find threads/posts on 'whatever you wonder about' - familiarize yourself with and use the search/advanced search facility :wink:

hope you will find this forum as supportive and helpful as I have over the years
good luck on your hms journey!
:bye: xxg
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Re: AWAITING RE-HAB IN LONDON NEW MEMBER

Postby sheppeyescapee » Fri Feb 24, 2012 12:06 pm

I would say that it is definitely worth the travel. I am just about to be discharged after being at Stanmore for three weeks. It really helps to be taken out of the normal situation and has given me the time to stop and think about my life and how I can change the way that I do things rather than being stubborn and making myself more ill. The staff here really know what they are doing and are very caring and wonderful couldn't have asked for more :)
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
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Re: AWAITING RE-HAB IN LONDON NEW MEMBER

Postby nemonie » Mon Feb 27, 2012 12:33 am

Hiya,

I live in the North-east and am due to go back for a second go round at Stanmore. I think it's pretty awesome (though not the food :lol: ) Actually the ward is closed at the weekends, so you are only there from Monday Morning 'til Friday morning/lunchtime. Because you have to be there early on the Monday, I travel down on the Sunday evening and stay at a hotel nearby, although the hospital has accommodation that they can put you up in if needed (I'm not sure if you need to pay for that, it is for family members of patients usually). I've stayed at the premier inns at Watford and Borehamwood which are both a short drive away. You can see the RNOH Stanmore website about transport, hospital transport or how to get there if making your own way.
Finally diagnosed with EDS-H and POTS after 20 years by the lovely Prof G \o/
Group Leader for Teesside & Co. Durham
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Re: AWAITING RE-HAB IN LONDON NEW MEMBER

Postby trekster » Mon Feb 27, 2012 1:36 am

Im seriously considering stanmore and have my family supporting my decision to attempt the rehab. Going to doctors on Friday about it and other stuff rhemy couldnt help me with.

Welcome
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
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