NEW DWP GUIDELINES ON JHS.

[barkingmad]

Hi all,
We are lucky that one of our professional members kindly reviewed the DWP's information on HMS/JHS and felt that they needed updating. she did update them and they were validated by Prof G.

For those of you who would like to know what information the decision-makers have on HMS/JHS you can have a looksy here

A-Z of medical conditions

This medical guidance for Disability Living Allowance and Attendance Allowance Decision Makers has been developed by the Departments Health and Benefits Division with help from experts involved in patient care. It contains background information on the more common medical conditions in DLA/AA claims, their treatment, the likely disabling effects together with the likely impact on ability to self care and get around. At present the guidance does not cover children.

The new guidance replaces sections in the Disability Handbook which will eventually be withdrawn when the new guidance covers all conditions presently in the DHB.
Disability Handbook

'Joint Hypermobility Syndrome'.

http://www.dwp.gov.uk/publications/specialist-guides/medical-conditions/a-z-of-medical-conditions/joint-hypermobility-syndrome/

Thank you Lesley and Prof G for updating the info.

[Superstottie]

That is a great document, I think it describes the condition and is effects very well! Hopefully people will start to understand it a bit more, it's just a pity that we don't have a list of conditions like this for doctors to consult so that they would understand it a bit more without us having to explain it all, or them googling it!

[barkingmad]

Well I have secret news that this may be changing too!

[Superstottie]

Wow, that would be fantastic, as some of the stuff on the internet that they find is slightly dodgy to say the least! It might also highlight the difference between Hypermobility and Hypermobility syndrome a bit more!

Thanks Barkingmad, and a great big thanks to Lesley and Prof G for the excellent info!

[sheppeyescapee]

Awesome that would be fantastic Donna, I know the doctors at my surgery definitely could do with some accurate information.

[barkingmad]

we aim to please! And I will pass on your thanks!

[madmum]

Great info. Will they be looking at children? My son was turned down for dla for not needing enough help.

[barkingmad]

The children's info will be passed (ratified) by Great Ormond Street, so it will be different from that of the adults. I guess the rational is that with the correct support none of our children with HMS should become as disabled as adults who never received correct treatment and then went on to develop physical and emotional disabilities.

In any case it will be hard for anyone to get DLA based purely on HMS.

[juliehplus6]

mod edit - quote of previous post removed as not needed


If only!!!! we were recently told that the postural curve in our 10 yr olds spine will become permanant and theres nothing they can do for it until it does!! I have asked over and over for prventative measures re his ankles. knees etc but have again been told they can't supply preventative measures

This new info for DWP looks great tho. I had to appeal our sons DLA last yr and was going to tribunal ( had the date) until they sent out a DR who actually understood all the issues. I couldn't believe it when we received a letter to say they had reconsidered with out having to go to tribunal ...even tho they had reconsidered before and not changed their minds

[cracker]

i looked it up on the DWP website & i printed some off one for my RBLI advisers (they all brilliant & understanding about my HMS) & i printed off one for the job center to show my new adviser on monday. thanks you Lesley & Prof G

[evenwen]

That is a wonderful summary! I think I might just print it out to take to my GP surgery- poor things could do with a break and they looked horrified by the book I took in

Is it/something similar likely to go up on the main website, and could it get added to a Wiki page, too? It would be ace to have a place to direct folk like friends and family as well which gives this much more info. Great work.

[mcbeauty]

If people want something shorter than a book to show friends, family or G.P.s on HMS and all the related conditions the handout attached is a great article that was written for that very purpose.

Mod Edit..please PM MCBeauty for information. The HMSA only advocates the use of its own information which is prepared by our medical advisors or at least validated by them.

[barkingmad]

hi folks, please remember that the HMSA suggests the use of its own information or provides links to information which has been validated by the HMSA and Medical Advisors. The new guidelines on JHS has been approved by both the HMSA and Medical Advisors

[trekster]

I've handed these guidelines over to my GP when she was doubting my way of coping with my HEDS thank you so much for updating them
especially explaining that severe cases require walking aids, it sort of won my GP round.

[cracker]

can you put this in with the ESA froms too?