HMSA members weekend 2012

Please check regularly.

Moderators: gila, Blaadyblah, Rosie, loosebones

Re: HMSA members weekend 2012

Postby barkingmad » Fri Aug 10, 2012 12:39 am

Good I am glad you are feeling more positive about it all. :bye:
barkingmad (Donna)
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
barkingmad
HMSA Staff
 
Posts: 3073
Joined: Sun May 25, 2008 11:48 pm
Location: plymouth

Re: HMSA members weekend 2012

Postby madmum » Fri Aug 10, 2012 12:41 am

I am looking forward to it,just hope my toe has healed by then.
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
User avatar
madmum
Carpal tunnel
 
Posts: 2297
Joined: Wed Feb 17, 2010 11:20 pm

Re: HMSA members weekend 2012

Postby barkingmad » Fri Aug 10, 2012 12:43 am

:D well I am surfe we will all be having some injury or other! :D

which reminds me...please remember that we cant accomodate wheelchairs or scooters in disabled rooms at the last minute. Rooms are already allocated and we always do our best to accomodate people but we are restricted by the rooms available. :bye:
barkingmad (Donna)
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
barkingmad
HMSA Staff
 
Posts: 3073
Joined: Sun May 25, 2008 11:48 pm
Location: plymouth

Re: HMSA members weekend 2012

Postby Jess » Sat Aug 11, 2012 10:32 am

Here are the Bracelets that I have been doing for HMSA for the last few years. I have also done a new design that is current to the lastest fashion.
Image
These are £2 in the purple or Blue

Image
And these are £5

There are Blue in the main knotting and have different base cord colours (blue, Black, Purple)

If you would like me to put one by for you and pay and collect from me at the residential. I wont have a stand but I will have the bag with me most of the time.
Last edited by Jess on Sat Aug 11, 2012 10:37 am, edited 1 time in total.
I feel like a bowl of Rice Cripsies!! I'm snap, crackling, popping everywhere!

Nottinghamshire & Warwickshire Support Group Co-ordinator
Jess
addict
 
Posts: 604
Joined: Mon Feb 12, 2007 12:06 pm

Re: HMSA members weekend 2012

Postby sheppeyescapee » Sat Aug 11, 2012 10:36 am

very nice Jess :mrgreen: I like the top blue one :)
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
sheppeyescapee
Carpal tunnel
 
Posts: 1235
Joined: Fri Sep 18, 2009 2:43 pm
Location: Stoke Gifford, Bristol, UK

Re: HMSA members weekend 2012

Postby Llaurin » Sat Aug 11, 2012 10:59 am

If anyone needs a ride, I am driving from King's Lynn through Peterborough, I am happy to go a fair bit out of my way to pick anyone up. Just me in the car so I'll have plenty of room.
Debi
married with a bendy daughter, three cats, HEDS, asthma, mild OCD, eczema and multiple allergies.
User avatar
Llaurin
Member
 
Posts: 78
Joined: Thu Jun 30, 2011 10:07 am
Location: Norfolk, UK

Re: HMSA members weekend 2012

Postby barkingmad » Sat Aug 11, 2012 11:52 pm

you made it then Debi thats good!

Jess dont forget I have some that you made a few months back. :bye:
barkingmad (Donna)
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
barkingmad
HMSA Staff
 
Posts: 3073
Joined: Sun May 25, 2008 11:48 pm
Location: plymouth

Re: HMSA members weekend 2012

Postby Tabi » Mon Aug 13, 2012 11:11 am

Gaaah Debbie wish I'd seen this before I booked train tickets!!
Group Leader for EAST ANGLIAN BENDIES [find us on Facebook]

Me: "Well I've got this new thing"
Doctor: "..."
Me: "It's just EDS, isn't it!?"
Doctor: "..."
User avatar
Tabi
nut
 
Posts: 436
Joined: Mon Sep 22, 2008 10:37 am
Location: Norfolk

Re: HMSA members weekend 2012

Postby Rosie » Mon Aug 13, 2012 1:42 pm

Hiya

Worth checking if you can get a refund on the train tickets

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
User avatar
Rosie
Moderator
 
Posts: 3297
Joined: Fri Jun 24, 2005 8:58 pm
Location: Brighton area

Re: HMSA members weekend 2012

Postby Llaurin » Mon Aug 13, 2012 1:54 pm

Sorry Tabi I only just found out myself that I got a place. If you can get a refund on your train tickets I can take you - just be prepared for plenty of stops on the way for stretching!
Debi
married with a bendy daughter, three cats, HEDS, asthma, mild OCD, eczema and multiple allergies.
User avatar
Llaurin
Member
 
Posts: 78
Joined: Thu Jun 30, 2011 10:07 am
Location: Norfolk, UK

Re: HMSA members weekend 2012

Postby barkingmad » Thu Aug 16, 2012 1:22 pm

Just a reminder to everyone that the office is only physically manned a few hours each week. Although we do try to keep the helpline covered as much as possible it is affected when staff are ill or on holiday. Please also remember that all volunteers and staff who work for the HMSA also have EDS and some also have fibro..we know we aren't perfect but we do our best to help where we can and ususally dont get paid for the priviledge. Staff and volunteers should not be made to feel bad by members who have tried calling the helpline several times! That is not fair so please treat them with respect!
barkingmad (Donna)
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
barkingmad
HMSA Staff
 
Posts: 3073
Joined: Sun May 25, 2008 11:48 pm
Location: plymouth

Re: HMSA members weekend 2012

Postby barkingmad » Sat Aug 18, 2012 1:25 pm

This message is going on the forum and Facebook to make it clearer for everyone. If you require a dairy free diet then please choose the vegan alternative on the menus.
BW Donna and HMSA
barkingmad (Donna)
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
barkingmad
HMSA Staff
 
Posts: 3073
Joined: Sun May 25, 2008 11:48 pm
Location: plymouth

Re: HMSA members weekend 2012

Postby Tabi » Sun Aug 19, 2012 7:27 pm

Debi, thankyou, but more than anything I don't think you'll want me - I think we have a leaders meeting thingie on Sunday and I don't want you to feel you have to hang around!! xx
Group Leader for EAST ANGLIAN BENDIES [find us on Facebook]

Me: "Well I've got this new thing"
Doctor: "..."
Me: "It's just EDS, isn't it!?"
Doctor: "..."
User avatar
Tabi
nut
 
Posts: 436
Joined: Mon Sep 22, 2008 10:37 am
Location: Norfolk

Re: HMSA members weekend 2012

Postby trekster » Tue Aug 21, 2012 2:40 am

Timeweevil wrote:Its going to be my first time on the residential and I will be attending alone. Is there going to be any kind of meet and greet at the start of the weekend? I'm assuming that I will be sharing a room with someone but don't know anyone. Suppose I won't know this til I arrive on the friday? I am a bit anxious that I don't know anyone but looking forward to the weekend.

Karen :)


I'm also a newbie and really look forward to meeting you. I am anxious and excited at the same time.

Is anyone driving up from the Bristol area or slightly south? Was wondering if someone (over the age of 25) would be
willing to share the driving with me? I will pay for 1/2 the petrol in return.

Is there a bar available to buy alcohol? Apart from the stalls is their anything else that I may need to pay extra for?
If so do you take cards?

Do you have an orientation or similar session? So overloaded im unable to read the information sent to me at the moment grrr.
If it could be emailed to me offlist then i can enlarge it or print it in larger print onto paper.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
trekster
Carpal tunnel
 
Posts: 1416
Joined: Wed Aug 17, 2011 9:45 pm
Location: near Bristol

Re: HMSA members weekend 2012

Postby barkingmad » Wed Aug 22, 2012 8:11 pm

Please can people stop ringing Hothorpe Hall about any dietary needs. They are extremely busy and will not alter a booking which the HMSA has made. The food is being organised by a chef with personal experiences of dietary needs including allergy reactions. He is well aware of all issues and is planning to label the food so that people are aware at each meal. Any discussions should take place with the HMSA who will answer any questions. BW HMSA :D
barkingmad (Donna)
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
barkingmad
HMSA Staff
 
Posts: 3073
Joined: Sun May 25, 2008 11:48 pm
Location: plymouth

PreviousNext

Return to Announcements

Who is online

Users browsing this forum: No registered users and 2 guests