HMS and Schools....Taking Action :)

[Miniyoda1970]

less than 6 weeks of starting Secondary School, my daughter had an Ice Skating accident resulting on having to use crutches. We spent months trying to get Docters to listen to us, so when she was finally diagnosed with HMS and referred to Great Ormond Street we thought that things would get easier....Wrong the real battle began, convincing the school.
After weeks of going up to the school for various reasons, i finally saw red when i had to pick her up from school as two older boys had cornered her and pushed her over in the corridor saying that she was "Faking it". After talking to her i discovered that a teacher had made her walk down the stairs on her crutches as she was fed up with her being late for lessons, due to her having to wait for the Caretaker to take her up/down in the lift between classes.
That was the final straw, i went into the school the next morning armed with printouts of all the information available on the HMSA and NHS CHOICES SITES demanded to see the Heads of Year and made them read all the info i had gain (also mentioned Education Authority and Health and Safey) worked a treat. She was issued Lift Key within 2 days, was given access to libuary for lessons like PE and Dance where she now reads or dose Homework it has made it so much easier and happier for her and us.
So my advice is gather every bit of info you can and make them read it, don't just tell them they won't listen.
But if they have the information put in front of them, hopefully they will be more understanding

[mazza111]

Nice result. Shame she and you had to go through all this first though

[madmum]

Well done. Took me numerous letters,consultant letters,hmsa leaflets etc to finally get my son some help. Have had to pay for a computer as the school would not fund it.

[minicooper_93]

well done my high school never believed me, i had detention after detention through knowing pe would hurt so i used to sit on the field and watch, the detentiuon was better than the pain though. my old teachers couyldnt believe it when a year after leaving school i went to them with a diagnosisi, they couldnt apologise enough!
too litle too late, i think hms should be taught to pe teachers while studying, to show them how to help the children rather than treat them like something on the bottom of their shoe!

[cyberbarn]

too litle too late, i think hms should be taught to pe teachers while studying, to show them how to help the children rather than treat them like something on the bottom of their shoe!

Funny you should say that... I was watching some of the videos from a colloqulum in America here: http://vimeo.com/35766706 and one of the doctors said that they want to have all young people doing sports to be screened for EDS because of the higher rater of injury.

Wouldn't that be nice if they would do it here too! Imagine the awareness that there would be! But it will never happened as it would be too expensive for the NHS

cheers,
Jennifer

[barkingmad]

On the positive side they could identify kids with flexibility, teach them control and strengthening exercises and then turn them into Olympic atheletes! Its such a waste of potential that they dont identify kids who have the potential physical attributes to benefit them in sports, arts etc.

[madmum]

Well said Donna! My son having the condition affecting his hands has helped him playing his clarinet.