Umm! Dont think that the lady was actually being strictly honest
I was told when I was filling in dla's for patients, to include anything relevant, as a non-professional they told me to send as much info as I could so that they can get an understanding of how my disability effects me daily. When I applied for my son, his OT gave me a book written for parents applying for DLA with children who had brain injuries...that had advice directly from the DWP, which said to include extra relevant material, including 24hr diaries, extra statements, full lists of professionals who had even just advised or touched base with the child etc. They reccommended ...as it can take people who find it difficult to write so long to fill in the form...to include an up to date page of info...as things could have deterioated or treatment changed,or professional contacts changed etc. Basically the info you send is EVIDENCE.
I've included a list of what I sent below which is strictly from memeory so I might have forgotten things....my idea was to send them so much info they couldnt deny I had some sort of problem even if it was 'overthetopitis'!
the dla form ...obviously
extra info on how it effects me ....typed
separate 24hr diary extract of a really bad day,
the updated info that I give Prof G everytime I see him which is basically a medical history with update since last saw,
list of medication, aids adaptations, heat pads, TENS etc (couldnt fit all this in form so put see attached document number blah, blah)
list of all professionals, details of when I last saw them, what they do for me, next appointment date,
attached care plans from OT,
attached social care assessment,
receipts from community services for all the aids/adaptations that have been supplied to me,
copies of medical reports from Prof G, local rheumy, ortho surgeon, Hospital OT, physio, Community OT, Orthotics, Social worker, pain consultant,
copy of report which indicates I have a carer....with permission from carer (ie mum)
copy of incapacity questionnaire...think its called personal capabilty questionnaire,
copy of letter from clinical rheumatology nurse stating details of acupuncture treatment,
copy of letter stating I had a place on the pain management course,
also statements from neighbour, 2 x friends, mum, brother, (but could be anyone who knows you well and your problems you dont need to send only one)
also sent a photocopy of blue badge and registered disabled card....this actually may be discounted as it is issued by local authority but they said I could send it so I did!!
details of EDS Hypermobility and other health problems from recognised websites...the details provided to decison makers who are non-medics by the DWP, are of poor quality and reflect people who do not have major sympton problems, and associated issues such as chronic pain syndrome, fibromyalgia, etc
I think that was all!!!
But always photocopy it and keep it safe..so if your original gets lost you can send another copy and have one to use at time of renewal.
It also saves having to re-write evrything again and again...also the dla form is great to give as a copy to your GP, so is the medical history with update statement..give that to any professional you have contact with..they then know what you have tried etc, and if you are like me where you go brain dead with fatigue, you then dont have to stress out that you cant remember what is relevant to say to them.
Hope this helped someone!! It worked for me anyway, I got awarded on first application.