Okay folks time to update you on my replacement Atos medical after sending a HUGE letter of complaint and then having the National Quality Audit Manager agree with me.......
The Doc came out on Wednesday 18th of January. My friend who is a CAB advisor was with me (as usual) and it was evident from the very start that this guy really understood my conditions. I have a feeling that they could have asked around and chosen carefully after what I wrote about their services. He did not recognise the name "Pots", but when given it's full title, he commented "Yes, with connective tissue / collagen disorders you can also experience stretchy, slack veins". I was most impressed. I made it clear that so far, the process has let me down and my friend, Richard added his comments where necessary. As he left, I still did not know how things would turn out.
On friday I recieved my letter.........High rate mobility, which needed to be back dated to June last year. I was pretty shocked as I really had got to the stage where I thought I would need to go to Tribunal. The next sentance blew me away.........Indefinate (although we may ask to look at your claim again some time in the future). The weight just lifted off my shoulders as this means I don't have to go through the trauma of renewal in May, ready for a new claim from this June. After checking my bank balance, the money had gone in last friday and I spent yesterday getting a new tax disc and sending off the form to get a rebate for the tax disc I paid for (a year) in November last year. I did not get any care (cooking a meal IS dangerous) but to be honest I didn't expect High rate on the mobility, so I am happy with that and feel very humble considering I know that so many of you are still fighting.
If you have just cause to complain and it comes from the heart with the passion of believing that you need to prove to these people that we are not lying when we fill out the forms, then go for it and do it well. If literacy is not a strong subject for you, try and get help from someone who can convay what you want to say in a more direct and forcefull way. Richard and I had prepared a questionnaire for the Doc, but we didn't need to use it in the end, but tell them that you expect any replacement medical to meet your personal needs and that the Doctor must have an interest and understanding of your intricate interwoven (complicated) conditions.
Good luck and if any one wants to inbox me, I'll help if I can. I have copies of my letter and might be able to help with the odd patronising sentance here and there to get their full attention. Thinking of you all. Liz xx
HMS and Raynauds (Diagnosed Sep 2009)