Thankyou for your kind words, as I didn't get the care component in January although I thought I was entitled I was too scared to appeal for fear of losing the mobility as that pays for hospital travel prescriptions mobility aides etc. so it was quite a shock to see it had been awarded, I put in the same info as last time about how i cope or don't cope with care side of things, but this time also put in an overview of each issue I have linked to the eds ie: bowel probs, balance,falls, moving about inside the home use of bathroom etc difficulty swallowing and then listed all probs I have linked with PoTs ie syncope balance falls tachy breathlessness chest pains etc plus two other neuro medical conditions not linked to eds & pots (tumour on optic nerve which affects depth perception and vestibular disorder from damage caused by radiotherapy) with this overview I was able to show how each thing affected me individually and also how each thing also crossed over and how they impacted on my own ability to manage certain tasks.
When my first claim for dla was refused (sept 2010) I was advised by the lady at the dwp to just re apply and not bother with appeal and that is what I did in Jan 2011 but this time with the support of B&W. I think for all of us we sometimes get so used to dealing with our problems that we become blind to them and what we see as normal is infact not normal, I had to take a big step back and really look at the impact on my life, it was a very depressing four weeks of form filling this time round and I was hell to live with almost going into total rebellion against all that caused me to be ill, pushing beyond the limits and then having a real crash. The letter they sent did mention that they had used prof grahams letter as evidence along with g.p and previous atos medical for esa which was last november. But I also think the bottom line could have been having a decision maker who took the time to look at the evidence and also read the disability handbook.
Sheppey I know you were doing your forms at the same time as me so hopefully you will hear soon (yours was renewal too wasn't it) one of the letters I had was it could take upto 11 weeks but I hope not that long for you.
Keep strong all of you, I will be thinking of you all with positive thoughts and sending gentle