to get a social care assessment and a carers assessment you ring your local Social Services Dept or Local Council, either way they will make sure you get to the right person, you can also request an OT assessment at the same time, some councils will register you disabled others dont, if Ot has already said that daughter need adaptations then, i would contact her and really push it. even if its not her dept she has a duty of care to tell you where and how to get the info you require.
Life sounds very hectic for you, do you have a social worker who can keep an eye on your needs too? This will be done again under the carers assessment...it is you right to have your own assessment done as a carer, they have to do it, some SS depts are slow though, but really insist and explain how difficult it is and that you really are physically and emotionally overstretched hun. You honestly cant keep that level of care up for your hubby and kids..its not healthy and will make you ill, so then there would be a major crisis for them to contend with...I really wish I was there to fight it for you...I get so cross that people like yourself are struggling so badly with no help!
To apply for motability, you can go to the website or there should of been an info sheet in your DLA award pack for daughter. They are lovely people who will talk to you about th ins and outs of it all.
Just had a friend round who said she cant get a cheaper tariff on elctric and gas,she is with a different energy supplier than me and she has HEDS/fibro too. Dont forget to phone the water boards...they can make you are priority, and get you water out if there is a problem with the supply. If it works out cheaper they can put you on a meter,...there is something called a social tariff, which takes into account low income families and families with members who are disabled.
Obviously the rates will vary county to county etc, but I know that if I go on a meter and the tarriff I would save nearly Â£300 a year. But I would have to pay the Â£497 social tariff even if I didnt use that much water. I am having a meter put in and seeing how it goes for a quarter, then make a decision about the social tariff. You can have the meter installed in Plymouth, and if it looks like you are going to go over the normal water bill, as long as its within a the first twelve months they will switch you back to normal rates, so there is a fail safe option there.
there is also something called a family fund which you maybe able to access...but I will have a look into that before people get excited, as I'm not sure of the ins and outs. Hope this has helped hun
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia