Received DLA finally - post here-don't start a new thread!

[alison1984]

thats great serenity its nothing less than you deserve we are waiting for my daughters claim at the moment they have written to her consultant for a report and he is in full support of her claim and is going to call me when he gets the forms to go through them with me fingers crossed for every one applying at the moment x

[serenity79]

Thank you, best of luck for your daughter.

[alison1984]

just wanted to say please dont any one give up, my daughter got her DLA award through yesterday for hih rate care and mob for no fixed time im over the moon not to have to go to appeal

[Rosie]

Wow Alison, that is really good news!



Rosie

[aninja]

6 weeks ago I was turned dowm for DLA, as im the opinion of the decision maker I did not need any help! When i spoke to my GP about it he was astounded then looked at the gp report. This had been completed by the practise nurse who has never examined me and she wrote that there were no problems that she was aware of! Gp was mad, she got a telling off anfd he wrote a letter of supprt setting the record straight. He worded it not to talk of hypermobility but of instability in the joints and explained how the instability affected me. He also included information on operations I have had so far and added that although these operations had helped none of them were curative.
Finally been awarded DLA after asking for a reconsideration and including occupational health report, supporting letter from gp. The Occy Health company my work uses is the same group that they use for DLA/ESA/IB medicals, so they couldn't argue with it!
Backdated to February.
aninja
xx

[NAPPY89]

hi all just to let you know i won my appeal after nearly a year and got high mobility and low care much better than i thought

[AnnaH]

I was turned down for DLA last year when my diagnosis was "just" fibromyalgia, osteomalacia (a vitamin D deficiency bone disease which had not been responding to treatment), asthma, severe, life-threatening allergies and Aspergers syndrome. At the time, I was using a wheelchair out of the house most of the time, I had to have help around the house and I had a carer that was funded via Direct Payments. I was in chronic, severe pain (and still am).

My denial letter was what my friend describes as an "I wish", as in "I wish I really could do all that!". I tried to appeal, but they lost the paperwork and I'm afraid to say, I felt so ill, I just gave up.

Everyone's been trying to persuade me to have another go but reading some of the posts here, of people much worse than me who've been turned down, I'm wondering if its worth it. What if they just think my diagnoses mean I get a bit sore sometimes, I'm double-jointed, need to take some vitamin D supplements, get a bit wheezy sometimes, am neurotic about my food and suffer from an obsession with Star Trek?

It is so annoying to me that they don't seem to have medical advisors who have a clue: case in point, they assume that conditions like allergies can be easily treated or you can just avoid the allergen. But it isn't that simple - I have to take a pile of medications just to function at this time of year because my primary allergy is to grass. And then it is difficult to go outside, which is a problem that has contributed to my severe vitamin D deficiency, and bone disease. So many problems are like a domino effect, but the DWP don't seem to appreciate that at all. I dread to think what they think about HMS - they probably just think we should all be on X Factor that that's that, like the magazine I found the other day in which a mother was told of her hypermobile child "Get him into gymnastics - he'll probably be brilliant at it!" (and I thought of the number of times the PE teacher had to write a note home in the form "Anna has fallen off... and has hurt her... ).

Anyway, I haven't decided if I'll have another go. The DWP seem eminently hostile towards people with multiple, variable conditions.

[aninja]

Hi Anna

You really should have another go, get help from welfare rights, they use the a book that relates to the legalitities on DLA and will ask specific questions to see if you fit into the categories under the law. They will word it so that they can defend and accompany you if it goes to tribunal
Hope this helps
aninja
xx

[Blaadyblah]

Because thi week hasn't been full enoug of good news I've had a letter from the DWP while we were away telling me that my (re)application has been approved and my award continued for another three years.

I'm chuffed to bits as I thought I'd made a right hash up of the forms and even mentioned there was more but I just couldn't write it down!

[sueiz]

Yay!!!!

I rang the DWP today to inform them of my care reassessment and GP referral for wheelchair, to be told that I've been awarded DLA!!! Yay!!! High rate mobility, and medium rate care - i can't believe it!! The award only runs until 2012, but it's a good job I was sat down, I think you could knock me over with a feather...(well, no change there then )

I'm so relieved not to have to fight through a load more paperwork for appeal. The reason givien for the time limit is that "treatment may change how much help you need" which I suppose is fair enough - I'm waiting for nerve-block injections in my lumbar spine.

Total time to get award, about 6 weeks I think, so not too bad!

To anyone thinking of claiming, I would say it's a worthwhile exercise; it was through filling in the form that i realised just how bad things had got, even on a good day, so was worth it just for that - it prompted me to swallow my pride & contact Social Services for a home care assessment, and speak to the GP for a wheelchair referral. That & the fantastic support & information here on the forum

Sue

[kiawah]

Hi All, thought it was time that I let u know that I was finally awarded Middle Care and High Mobility DLA recently we had tried twice and got nowhere - low rate care! as I do voluntary work for a carers organisation I asked one of the advice workers we completed the forms again submitting the same information as before but inc updated increase dose of medication This time notice we feel was taken of what was put down.

Now we have another prob tho - completing one of these other sickness forms - anybody got any suggestions or shall i just copy down that which was written on the DLA successful application - GP is also getting pretty cross that i have to submit a sick note all the time - been a real struggle over the past two months or so hopefully we are getting on top of it now.

regards to all

[loosebones]

Hi there, glad you got the award. Take a look at this thread where others have posted their award info... http://www.hypermobility.org/forum/viewtopic.php?f=17&t=3968&p=174138&hilit=awarded+DLA#p174138

[bearone]

hi all, can i please just ask what it is that you are all receiving dla for? is it hypermobility, or EDS or some of the others? just wondering. i'm 32, i have hypermobility (which over the last 1-2 years has got progressively worse and debilitating) and anxiety, as well as tumours in my right kneecap, and i have NO pain-free days anymore, and NO sleep. even built up a tolerance to the tramadol now i'm a bit put off by the whole 'dla application' as i don't want to waste time going for medicals and the like, and then to basically be called a fraud in the 'rejected' letter. i applied for it about 5 years ago, for the tumours only, and was rejected because they said it "wasn't recognised", even though my specialist at sheffield hallamshire had written a very strong report detailing the pain caused and immobility and the fact that it's "chronic, persistent pain, with no fluctuation" (i have a copy of the report). now i've got the tumours to cope with as well as the hypermobility onslaught TOO, with no sleep cos of the pain, and i'm finding it harder and harder to cope, but also 'scared' of applying as i don't feel strong enough, physically AND mentally to travel to go through medicals etc, and then maybe to appeal too

[sueiz]

Hi bearone,

I listed HMS, degenerated disc and bony ankle equuinus. They sent off for a Gp's report, but no examination, and i got 2 years DLA high rate mobility and mid-rate care. i don't know which of these swung the vote, they don't tell you that!

good luck - just remember to give them the bad day picture.
Sue

[sueiz]

Sorry, just re-read your post - sending hope you feel able to give it a try again; also getting in touch with Social Services and asking for a home care assessment might help to strengthen your case with DLA, and get you the help you need?

Sue x