Personal Independence Payments (PIP)

Claiming for disability benefits, procedures, forms, doctors visits, where to get help and advice.

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Re: Personal Independence Payments (PIP)

Postby barkingmad » Tue Feb 21, 2012 10:43 pm

Ok will send it in as is and add note to beg for more responses from
members.
barkingmad (Donna)
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
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Re: Personal Independence Payments (PIP)

Postby sheppeyescapee » Fri Feb 24, 2012 12:30 pm

I'm hoping to put some more comments sometime in the next week when I've had a chance to read through it all properly
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
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Re: Personal Independence Payments (PIP)

Postby star gazer » Fri Mar 02, 2012 2:27 am

the welfare reform bill has passed through the final hurdle and now just waits for royal assent :evil:
PIP will definately be replacing DLA.
I have attached a link to the BBC report for further reading.
http://www.bbc.co.uk/news/uk-politics-17204301

Over the next few weeks I will try and collate the replies that we have and any others that come in to this thread. now that we know that PIP and the welfare changes are definately going to be happening it is really important we have our right to reply to the consultation which at the moment is still in second draft. There was mention that pain with walking will be taken into account but it is not clearly stated in the descriptors, it is these sorts of grey areas that need addressing. Overall the feeling is that whilst DLA leaned more to those with physical difficulties, PIP leans more towards mental health difficulties which were in the past not very well represented, however I feel that equal weight should be given to both elements and as more and more people are "testing" to see what their award will equate to it is emerging that the higher rate of mobility DLA will be down graded to standard rate in PIP unless they do take into consideration pain fatigue and consequences of reliably repeating an action in a safe and timely manner.
spartacus have now pulished their latest PIP documents, I haven't had a chance to read them through yet but will put up the link so that we can all access and share any comments or concerns.
http://wearespartacus.org.uk/spartacus- ... downloads/

I will keep you all updated as and when anything new comes in and Nemonie and I will work on the draft response with the help of your input which will then go forward to HMSA for approval before submition.

take care all of you
love star gazer x
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Re: Personal Independence Payments (PIP)

Postby trekster » Sun Apr 01, 2012 11:20 am

i think my PIP will be assessed around November 2014 because thats when my care and mobility run out.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
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Re: Personal Independence Payments (PIP)

Postby star gazer » Mon Apr 02, 2012 11:05 pm

DLA reform and Personal Independence Payment – completing the detailed design


This consultation seeks views on the Government’s proposals on some of the benefit rules underpinning Personal Independence Payment, Disability Living Allowance, Carer’s Allowance and Attendance Allowance. These rules will inform the development of secondary legislation. It also provides further information on policy decisions that have now been made.
http://www.dwp.gov.uk/consultations/201 ... sign.shtml

have a look at this document and see what you all think. we can reply to this by the 30th of june, it is a different consultation to the draft proposal we are already looking at whose deadline is 30th April.
I also read somehwere but cannot find the document now that and area in the north of england will be the first phasing for pip a bit like the ib to esa transfer which was handled through selected dwp offices initially. If i find it I will post a link.
best wishes
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Re: Personal Independence Payments (PIP)

Postby gillycharlie32 » Mon Apr 09, 2012 1:18 pm

I've been looking for the links suggested to be 'at the bottom of the article' in this quarters HMSA publication. I wanted to particulalry read the fourth item - the sunmmarised second draft etc. I'm not sure where to find this?

Can you place the link here for me or tell me exactly where to find it please?

Gilly
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Re: Personal Independence Payments (PIP)

Postby star gazer » Tue Apr 10, 2012 2:35 pm

Hi gillycharlie, here are the links that migh help. the first is the spartacus report which is the "easy to read" version.

http://wearespartacus.org.uk/spartacus- ... gulations/

http://www.dwp.gov.uk/docs/pip-second-d ... ations.pdf

the second link is the governments second draft. Spartacus published an easy to read version to make it easier for people to understand what was actually being stated in the government document.
if you need help with any other links or if you have any questions we will try and help.
best wishes
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Re: Personal Independence Payments (PIP)

Postby barkingmad » Thu Apr 12, 2012 1:04 am

Hi Stargazer,

I have emailed some responses to you from members who saw the newsletter article :D
barkingmad (Donna)
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
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Re: Personal Independence Payments (PIP)

Postby star gazer » Thu Apr 12, 2012 11:16 pm

Thankyou Donna, have forwarded to Nemonie as we are going to work on the response next week.

if anyone else has any thoughts on what they want to add to the reply to the consultation then please post asap and we will collate what we have to put in the response.
Thankyou to everyone who has posted, you have made very valid points that are really important.
star gazer x
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Re: Personal Independence Payments (PIP)

Postby sheppeyescapee » Fri Apr 13, 2012 12:31 am

Did you see the newsletter from Benefits & Work? Saying about mobility payments for motability stopping after 28 days in hospital, currently on DLA they continue until the end of the lease but under PIP they will stop after the 28 days. So you could be in hospital for 5 weeks and won't have a car anymore to take you home as the payments to motability will have stopped and car taken away :wall:
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
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Re: Personal Independence Payments (PIP)

Postby trekster » Fri Apr 13, 2012 12:42 am

Thats disgusting, well done for finding that out. Simply put i would leave against medical advice in that situation if i could
but then again that's not always possible.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
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Re: Personal Independence Payments (PIP)

Postby pink » Fri Apr 13, 2012 8:20 am

I'll read all the documents over the weekend and post my replies here then if thats ok?

Also, as of most people on here, I'm very worried about loosing my car and benefits (currently on HRM and LRC). I sometimes feel like I don't have too many adaptions in life except my crutches until I remember all my specialist access to work things, the fact I never cook , have my car and blue badge to make life soooo much easier and hubby helps in other ways too (as well as always being tired and 99% of time not making it through the weekend days without a nap after a working week). My current award is indefinate so does anyone know when I may be liable to be reassessed? Also, my cinema discount card has expired and to replace this I need proof of my disability (and stupidly lost last yrs letter). Has anyone else got their yearly renewal letter through yet as I'm still waiting for mine?

Thanks
HMS diagnosed early 2008, raynauds diagnosed late 2007 and mild ibs diagnosed much earlier. Symptons resembling fibro but not actually fibro, now looking at possilbe mild autonomic dysfunction and possible early signs of carpal tunnel.
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Re: Personal Independence Payments (PIP)

Postby star gazer » Fri Apr 13, 2012 11:30 pm

Got my disability renewal letter last month (for the register)
yes please pink, please post your replies on this thread.
Sheppey, I saw that on B&W and wondered about that especially with things like the three week rehab but that is three weeks and not five. I will see if motability have commented on that statement.
sg :)
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Re: Personal Independence Payments (PIP)

Postby star gazer » Fri Apr 13, 2012 11:56 pm

http://www.publications.parliament.uk/p ... 93we13.htm

found this document buried in the internet whilst trying to find out about the motability stuff. It does mention motability at point 70 but also seems to give an overview of the governments expectations of what they want to gain fromintroducing pip.Makes interesting reading!
it was published in Feb 2012
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Re: Personal Independence Payments (PIP)

Postby Englishgremlin1 » Sat Apr 14, 2012 9:59 am

I know you are planning a reply, and I have looked at the new threshold and think it has two big flaws that will deny people the help they need. someone needing crutches will normally receive standard rate mobility, yet may be able to do less than a chair user.

Also with the daily living part the criteria has been set too low, leaving some who cannot dress themselves with so little help it is a joke.

One other major worry I have is that there is no commitment to keep the benefit seperate and independent of care packeages, it must remain as the original intention was to cover the extra costs of living not basic care needs.
If we can crack joints we can crack systems

Male diagnosed with Hypermobile EDS November 06.
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