Hello Sola and Laura Jane,
This is a difficult one. When I had my first child I hadn't yet been diagnosed, but I had plenty of pain already. I suspected that carrying and caring for a baby would be difficult for me. By the time my daughter was a year old, my EDS was much worse. So when it came to baby2 I knew what I was letting myself in for. I'd been diagnosed, and I knew exactly how difficult the pregnancy might be, how difficult it would be looking after the baby, especially whilst already having one to take care of, and how it might cause my condition to deteriorate. We went ahead and tried for a baby knowing all these things. The way it's turned out, the pregnancy was horrible (not dangerous) and caring for her was difficult. Having a young family is very hard for someone with alot of pain and physical difficulties. And it's hard for my husband because he has so much to do. He has a stressful full time job and needs to be an active father too. My pain and limitations are bound to impact on the whole family.
BUT, we went into this with our eyes wide open and do not regret a single second. We have 2 beautiful wonderful children and the pleasure they bring outweighs the pain and difficulties a million times over! Having children is about more than the sum of its parts, so to speak. As long as you have thought it through and are fully aware of the possible implications, then that's good. And of course you could have a very positive experience. Many people with HMS/EDS have mild pregnancy problems and manage it all very well. Get fit and healthy beforehand and do the pelvic floor exercises religiously!
This has been my experience only, but you hadn't had many replies so I thought I'd jump in. Others may offer you more positive outcomes but as I said I do see this as a positive outcome - you couldn't have a more positive outcome than my 2 girls!