by Rosie » Tue Apr 02, 2013 12:32 pm
Hiya
I work eith young children and usually use m wheelchair when I am in the nursery with them, but they also see me get out of it and walka round, or stand as I am getting the chair in the car, and they just accept it. Occassionally one of them will ask me why I have a wheelchair and I usually tell them it's because my legs don't work very well. To be honest, they are a lot more interested in how the chair works and if they can have a go. The nursey has a toy wheelchair to put teddies in, and sometimes they will play with this beside me, or fetch it to show me, but they accept the chair and my limitations much better than adults do and love to be chased by me in my chair, even though I can't keep up with them on trikes or scooters.
I think it is important to explain to children, however young, what is affecting your behaviour around them. Little minds are wonderful things but they can sometimes think that it is because of something they have done that you don't pick them up today, so explaining that your back hurts, or your shoulders aren't working properly could be reassuring for them, as it explains what you are doing or not doing.
Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!