Many thanks for your reply! You don't need to worry about scaring me, having read through this forum, I'm pretty well aware and pretty well terrified of what might be in store for me. At the moment we are still going ahead with our plans to try for a baby, although that may end up being re-evaluated when I have to come off most of my meds.
Since I last posted, my pain management has changed dramatically as now I'm having regular physio (who even knows what to do with me!!), I've just got special insoles fitted and tomorrow is my first appoitment with a clinical psychologist. My physio exercises are very much pilates-based and I've noticed a definite improvement in a relatively short period of time. I'm also hoping to start pilates classes at the physio in January and until then I have various things at home to exercise with. I've also been gradually losing weight, which is very pleasing.
I have already discussed trying for a baby with my gp and my pain specialist and I wasn't exactly thrilled with their reactions. The pain specialist said that I couldn't have any pain medication at all and would spend nine months in a wheelchair in absolutely agony, but if I was willing to go through with that, then congratulations for the baby.
My gp said that she didn't really want to give me any pain medication either and if the pain was too bad for me to keep working during the pregnancy, then surely I could just not work for nine months.
My physio said that I should do as much pilates as I possibly can and that I would probably need a support belt really early in the pregnancy to try to pre-emp or at least delay SPD. I think I like her advice best.
Not for the first time in managing my HMS the doctors have pretty much left it all up to me, but I'll be sure to demand physio as soon as a pregnancy test gives a positive result. And I'll definitely take any help I can.
With regards to getting obstetrician to look after me as well as a midwife, would that happen automatically because of my HMS, or is this yet another thing I need to pester someone with until they refer me on?
Thanks again Helen! (By the way, would it be okay for me to PM you with some more questions, as they are a bit off this topic?)