Hi Naama it might be worth getting a refferal and seeing the consultant like I did when I was thinking about the interthecal pump I discussed it with the nurse had a look at it went away and decided it was a no at the moment but its not like a definite no but on the back hanger at the moment till other options have been gone through. Talk to the consultant there if you go and see him and see what he says has he ever seen a hms patient if so has he done it on them before the risks, the fors, procedures risks etc how many patients have had sucess with it that kind of thing. Yes it sounds like major surgery but the choice would be yours.
I hope this kinda makes sense
Hms December 99, Dormant Lupus Sept 07, Back Pain, Raynauds, RLS, Fibromyalgia June 08, EDs Aug 08, Marfanoid features Aug 08, Dyspraxia age 5