lizzie.
I'm sorry it is being so complicated, and hope you get the scan tomorrow without futher problems.
Hannah
HMSA Patron for Kids and Teens. EDS III. POTS. For various cartoon descriptions of HMS&POTS and ways to help others understand HMS&POTS see http://www.stickmancommunications.co.uk
Oh Lizzie, they are really mucking you around with this. it goes ahad tomorrow.
Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
Got a call this morning saying they had moved my MRI up to 11:20am instead of 5:40pm. All went ok although had to keep stopping as it was quite painful, but at least its done. Reports should be here in 24 hours.
Just wanted to say thanks for all the kind comments. Will update when the verdict arrives.
I am pleased that you have had you MRI today, I will be thinking of you tomorrow when you get our results.
Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
Results were meant to be here within 24hours i.e yesterday morning but its been 48hours now and still no sign yet? Rang up Prof G and he said he hasnt recieved the report yet, so rang the MRI people and they said they sent it yesterday by email and fax? So, bit stuck now
I emailed him this evening, about 6:30pm but no reply.....
And now I'm assuming that I wont find out until at least next week as its now the weekend. All I want to do if find out whether i can relax or whether something needs doing
Have spoken to Prof G now. There is some good and bad news i think.
Good news - Although yes there is some problems with my neck and he said he wants to keep a close eye on it, its not unstable enough for the surgery - thank goodness.
Not do good news - He is still concerned with the level on numbness, pain and lack of response when he did nervy stuff to my hands etc. He is sending me for more tests after Xmas so try and find out what is wrong and go from there.
So there we go. I just wanted to say a big thanks to everyones kind comments, i really appreciate it. Take care.