Anyone had surgical Mole removal ?

Surgical procedures used in the management of HMS.

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Anyone had surgical Mole removal ?

Postby Sue New » Sat Aug 19, 2006 11:28 am

Hi Everyone,

It's me again. Having moles seems to run in my family- particualrly on the female side, and although I have more than I care to remember on my body I have never been too concerned about then from an asthetic point of view. I have lots of different types and colours too - some flat and a number that are like skin tags. I have often meant to go to the GP to have a mole check as it is difficult to tell if any of them are changing, particularly the ones in hard to reach or see places :oops: but there have always seemed to be more pressing things going on at the time.

Anyway, about a month ago I woke up and when I looked in the mirror my stomach was all red. It seems that one of the moles on my tummy has got caught on something and was bleeding. It took quite a few hours to control the bleeding and I must admit I did pick at it slightly :oops: to the point that it eventually broke off. I wasn't overly concerned and forgot to mention it to the GP but the day before yesterday a bigger mole (big enough to cast a shadow on my tummy) which was around 1.5 inches away from the first one started to hurt and when I looked down it too had started bleeding. I don't recall knocking it at all :? before it was quite symettrical and rounded but now it looks all jagged and different colours and even though the bleeding proper has stopped it is still seeping and there is a red patch on the skin around it which feels hard. It is in an awkward place just in the crease of my tummy when I bend so even small movements keep aggravating it. I thought I would call my surgery to run it past my GP just to put my mind at rest really, and he told me to come into the surgery for him to have a look at it.

Upshot of it is that he has put me on his waiting list for minor surgery to have this one and 2 other moles removed (one which is right on the waist line at the back and often gets caught on my underwear or trousers and one on my mid back that gets caught under my bra strap). If it was purely for cosmetic reasons I would not even entertain having them removed, but these 3 in particular do often get caught or nicked on clothing and I think it is the right decision to get them removed and checked out. He said he will only do the 3 problematic ones for now as if he removed all of them he would be there all day :roll: Interestingly enough, when he did the mole check it came to light that all of my larger, floppy moles are on the right hand side of my body, the same side I get my worst symptoms associated with my EDS :think:

My main question (sorry to have rambled on as usual) is has anyone else with HMS/EDS had surgical Mole removal and if so how was the experience for you? My GP has already warned me I will be left with scars (nothing new there, I scar just by scratching myself with a nail) and that he will inject the areas with local anaesthetic which may or may not be effective because of the EDS - even that dosn't worry me as I have quite a high pain threshold when it comes to acute pain. He said he will send the offending moles away to be biopsied but he does not think they look sinister :pray: .

Anyone elses experiences of this procedure will be greatly received.

Thanks for listening.

Sue.
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Postby Rosie » Sat Aug 19, 2006 6:20 pm

Hi Sue

I had a mole on my back removed a few years ago. It was a fairly flat one that didn't bleed but it did itch all the time! There was a new Dr at the GP surgery and she removed it there. She used local anaestetic - it needed a lot but it did work for once, and literally 'scraped' it off. I had to go back for a while for dressings, bit awkward as it was on the bra strap line. She also sent it off for biopsy, it seems to be routine. Only problem I had, it has grown back again. The Dr did warn me this might happen.

Hope it goes OK for you.

:bye:

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Postby Sue New » Sat Aug 19, 2006 7:08 pm

Hi Rosie,

Thanks for sharing your experience with me. I am not worried about them being biopsied but I guess I am a little concerned about the healing, particurlarly with my track record. If you don't mind me asking, when it was first removed roughly what sort of size was the wound?

Bye for now,

Sue.
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Postby Retro » Mon Aug 21, 2006 12:26 am

Hi Sue,

I haven't had any moles removed myself (apart from the one I accidentally removed myself :roll: ). I do remember a friend having a couple removed a few years ago. There were very small scars where they were removed from (about 1cm) not sure how they get a straight scar from a round mole but they do!

Hope this helps ease your mind a little.

Lindsey
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Postby Sandy L » Mon Aug 21, 2006 1:15 am

Lindsey:
They often cut an elliptical incision. It is easier to draw the edges together. Since a wound heals from side to side, it is important to have the sides close together.

Sue:
I don't know what your moles look like, but your description raises the possibility that they extend out from the skin, rather than lying flat. Sometimes those can be managed by winding a thread tightly around the base and tying it off. That is especially easy if they have a thin stem and thicker top. They will fall off after a few days. They are a little more likely to recur that way, but it is less trauma.
I am a physician specializing in occupational and environmental medicine. I am not an authority on HMS or EDS, but find I have several patients with the condition and am trying to learn more.
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Postby Sue New » Mon Aug 21, 2006 9:39 am

Hi Retro,

Thanks for your response. My mole that started bleeding about a month ago "accidentally fell off" after me fiddling with it too. There is now an irregular shaped flat brown patch where it used to be.

Sandy,

Thanks for your medical input. I have many different types of moles but the 3 problematic ones are all large sticky out ones which have a thin stem and thicker top as you say. I asked my GP what I should do in the meantime until he can remove them as the one on my stomach keeps bleeding and seeping and is very painful as it is in the crease of my stomach. He told me to just wear a plaster over it to protect my clothes. I changed the plaster yesterday and it looks like it has gone septic as there was a lot of yellow discharge mixed in with the blood :oops: . I have put another plaster over it but if it is still like it next time I need to change the dressing, do you think I should go back to my GP (or Nurse specialist)? I think I will be waiting around a month before he can get me into his minor surgery clinic.

Any advise greatly appreciated.

Sue.
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Postby Sandy L » Mon Aug 21, 2006 12:03 pm

You probably should see your doctor or nurse practitioner if it continues to look infected. It will take little time to remove it.
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Postby Sez » Mon Aug 21, 2006 12:07 pm

Hi Sue,
Sorry to hear you're having to cope with this as well. Jay had a couple of moles removed a few years ago, and the doctor just did it there and then. Not sure if that's routine for our GP, or if, with his history of cancer, they decided to err on the side of caution.
He has suspected EDS, so I hope some of this is helpful:-
He, as usual, needed several local anaesthetic shots, but still had a lot of sensation when the moles were being removed. :? The wound was stitched (just two stitches) and he had to go back a week or so later to have them removed. He had to be careful of the areas for a couple of weeks to make sure they all healed properly. The largest one was on his neck, and it has since come back, but flesh coloured and flat, so we're not 100% if it is just scar tissue. Keeping a close eye on it, in case Jay needs to go back to the doctors for another check. I think the removed tissues automatically go for biopsy to ensure they're not cancerous.
He did find that if the dressing on the wound got knocked (i.e. turning over in bed) it would bleed profusely and often bled through the dressing, which was a little worrying. However, they seem to have healed okay although it did take several months for it to heal properly, as it got knocked quite regularly, but once the stitches came out and the dressing was removed, it scabbed over quite quickly after a knock.

Hope this helps!
Sez

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Postby Rosie » Mon Aug 21, 2006 2:48 pm

Hi Sue

The mole I had removed was different from yours, it was flat, circular, and about 1.5 cm across. I think the Dr scraped it off, rather than cut into the skin, as it was quite shallow. This left something like a deep graze on the skin, slightly larger than the mole. This was not stitched or anything, but left to dry and heal.

Hope this helps.

:bye:

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Postby Sue New » Tue Sep 19, 2006 7:27 pm

Hi Guys,

My GP surgery called up today to say they can fit me in for the Minor Op to have my moles removed on October 10th. I accepted the date but then realised I am having my Bladder Sling surgery 13 days later. Two of the moles my GP is planning on removing are on my back and I would imagine tht I will be lying on my back when I have the Bladder op :oops: . I noticed that Sez said Jay had to go back to get the dressings changed 2 weeks after having the moles removed and had to take it easy in case the area got knocked for a while. Do you think 13 days is pushing it for the incision sites to have healed in time for my big operation, and with my track record of poor wound healing, do you think having this minor op is too much of risk so close to this other more important one?

I hate to turn the appointment down, but I think if I had to I would not be getting in to have the moles removed until at least November, and they are in awkward places where I keep catching them and making them bleed.

Any thoughts guys?

Sue.
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Postby Retro » Tue Sep 19, 2006 9:28 pm

Hi Sue,

I think this is probably something better discussed with your GP but...in my very humble opinion even if they're not fully healed when you have the bladder surgery I wouldn't have thought it would be a major issue as they should be very small and flat and if there is any problem with healing then they will be dressed. Less of a problem I would imagine than the moles that are caught and bleed on a regular basis :wink:

Good luck.

Lindsey
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Postby Sue New » Tue Sep 19, 2006 11:24 pm

Thanks Retro (I like your new avatar by the way :wink: ),

I have had a chance to discuss this with my hubby now (he has been away on business in Scotland until tonight) and he is of the same opinion.

If my skin healed well I would not even have been worried but it is particularly bad at the moment :cry: . Also, I know from experience when I had my last Knee op in January, it very nearly did not go ahaed because I had an open sore on my toe that would not heal. Even up the the very last minute when I was oustide the anaesthetic room it was not 100% that they would do it and the surgeon had to come and take a look before a decision was made. I know that that was a slightly different scenario, but it still makes me a little wary of what may happen this time. I have a very bad track record of going to my pre-op assessments and being told I am not fit enough for surgery. Fingers crossed that does not happen this time (for my 13th op in the last 10 years - let's hope this is not an unlucky omen :wink: ).

Take care,

Sue.
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Postby Sue New » Tue Oct 17, 2006 4:44 pm

Hi Guys,

Just a quick update. I did postpone my Mole Removal surgery in the end as I was getting lots of conflicting advice. In the end I decided that it was best not to jeopardise the more major op for the sake of a few bleeding moles. I now have a new date for Novemebr 21st so all being well, I should be pretty much recovered from the Bladder Surgery by then.

As it turns out, I think I made the right decision as I am already considered fairly "high risk" for the op (I had the pre-op assessment today, and because of some of my associated EDS problems as well as my Duplex Kidneys, it has been decided that I am admitted the day before). I think if I had turned up today with unhealed wounds as well, they may have turned round and said they we not willing to go ahead with the op.

Take care all :wink:

Sue.
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Postby Mari » Tue Oct 17, 2006 8:16 pm

Hi Sue,
Does that mean you're going in on Sunday? :shock: You know you'll be in my thoughts and prayers. :pray:

love Mari x
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Postby Sue New » Tue Oct 17, 2006 9:30 pm

Hi Mari,

Yep, I will be admitted on Sunday. Just as well I have recently received the new Purple Eeyore Pyjamas I ordered on E-Bay. I think I have mentioned it before, but it is a bit of a tradition for me to always buy a new set of sleepwear whenever I have another operation.

The anaesthiologist is going to track down my recent Lung Function test results (I only had them last Thursday) and is insistant I stay on all my meds right up to the morning of the surgery s she is worried about my High Blood Pressure and Reflux problems. I think they just want to keep an eye on me the night before to make sure they are taking as little risks as possible.

Thanks for keeping me in your thoughts and prayers.

Take care,

Sue

(PS. Hubby should be sending you the package of info from the conference soon.....)
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