Glucosamine sulphate and chrondrotin suplhate

Alternative therapies - chiropractice, osteopathy, accupuncture, massage etc

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Glucosamine sulphate and chrondrotin suplhate

Postby Guest » Sat Jan 07, 2006 10:09 am

Hi there
I am 33 year old new member and have been having pain for 5 years in my upper back. My GP told me I was hypermobile in 2003 but gave me no advice on managing my condition. I have had one course of physio (he didn't seem to know much about HMS) and am on the waiting list to see a physo again. My doctor is reluctant to refer my to a hypermobility clinic but I am perservering!

Anyway, I have been reading about the above supplements. Is anyone taking these and have they been efficacious?

Kirsty
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Postby nonyanomemory » Sun Jan 08, 2006 3:19 am

Hi Kirsty, I am afraid i don't have an answer to your query but would like to Welcome you to the site. There is a wealth of tips and information to be found dotted around the boards and leisurely reading of posts and adding to existing threads with your own queries I hope will help. If you have a question which you can't find the answer to by trawling through the boards it may be worth your while using the search facility found above and if nothing pops up feel free to start a new thread. Reading through the information found via the home page and the database of links may be beneficial. Good luck with your referral to a hypermobility clinic.

nonya
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Postby kayadlington » Mon Jan 09, 2006 11:06 am

Glucosamine is mentioned in a thread in diagnosis and doctors call Omega 3 and my HMS.
I also took it myself a few years ago, but after 6 months hadn't noticed any benefits so I gave up.

Wishing you a painfree day.

Kay
"Before I shaped you in the womb, I knew all about you. Before you saw the light of day, I had holy plans for you" Jeremiah 1:5
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Postby Hayley » Tue Jan 10, 2006 12:25 am

I personally wouldn't take those particular supplements as when I was having physio, the therapist told me it would probably make me worse because they are designed to loosen the joints. I don't think I want my joints to be any 'looser' lol!

Hayley :)
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Postby GLYNIS » Mon Feb 20, 2006 6:06 pm

:sheep: I had never thought of that .I was recomended to take it 2yrs ago by Prof at hospital. :roll: Still taking it now ,But I do have osteoarthrits to ..Has anyone else any thoughts... :?:
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Postby madclaire » Mon Feb 20, 2006 11:58 pm

I've been taking them for a while, and i've not noticed any inprovments. If anything, i'm worse
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Postby Retro » Tue Feb 21, 2006 2:20 pm

I take Omega 3 because it's supposed to help your brain to work. I tried Glucosamine and Chondrontin but had an allergic reaction to it so stopped after 2 days.
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Postby Rachel1985 » Tue Feb 21, 2006 4:54 pm

Hi,
I've been seeing a good private physio because he's worked with HMS before. He advised me to take Glucosamine sulphate & chrondriton together. I was told although your unlikely to feel a huge difference if any, you'll be glad you took it regularly as you get older (i'm 20) & that the effects would become more noticable as it builds up. It also helps protect against Osteoarthritis which we're more prone to. It can be expensive to buy but i was advised to get it from healthy direct (type it into google) There's also info there about the various components of the diff joint formulas they sell.

As for the increasing flexibility, from what i've read & been told it's not the above that will make that worse it's a thing called MSM which sometimes is found alongside Glucosamine & Chrondriton, but can be bought separately & you'd obviously want to avoid it unless you had arthritis or conditions that make you joints stiff & unflexible.


Rachel
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thankyou for info

Postby GLYNIS » Tue Feb 21, 2006 7:31 pm

Rachel many thanks for your post . Puts my mind at rest I shall go on taking it. I order mine from Goldshield they have loads of offers. At very good prices THANKS once again
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Postby Rachel1985 » Wed Feb 22, 2006 11:43 am

You're welcome :)

I'll check out the place you get your from to compare prices!
Good luck!
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Postby Guest » Wed Jun 28, 2006 5:58 pm

Hi

I went for first visit to rheumotologist today, comfirmed the HMS and possible osteoporosis in knee and neck. She said that new studies in US have just shown that taking glucosamine hydrochloride (not sulphate) is showing better results and has advised me to try this. has anyone else heard this ??
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Postby Guest » Mon Jul 31, 2006 7:01 am

ive read nowhere that theres anny proof they work, sadly i think strength training is the only way to make any changes as of now. the right ones as directed by a GOOD physio theropist who has HELPED other HMS patients, it will also take motivation as results will take along time. years even. and if glucosmine works it would only work slowly, no drug is gonna make cartilage noticably grow back in 6 months, /////// moderating edit innappropriate contenti wish i was a scientist or a docter id devote my life to the study of HMS. if my hands were anywhere near where my heart is id become one haha but alittle late for me now. but i think its a matter of time ebfore a study will show something that is proven to increase the quality of life from those suffering from HMS, even if its not for everyone as everyones condition is unique. at first it was good to know that i wasnt the only one that was suffering. but now i think its horrible how many people are, whether more or worse. always helps me to think about the future, even if i have to tough it out with HMS, there will have to be treatment for my kids.
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Postby firefairy » Mon Jul 31, 2006 12:18 pm

Ur right ryan glucosamine is no replacement for good PT but it is supposed to help with the collegen and is a longterm erm.... insert word that is not solution here (terrible word blind moment sorry guys). So its a long term thing that may help in 20 years which i think is worth it.

Thanks for the tip on the diff type heatherp - by sheer coincidence that is what i was taking cause it was on sale :lol: . I have found it seems to react with my NSAIS though :cry: - anyone got any ideas as i would like to take it but cant stnd the belly pain?

Kirsty i know that was ages ago but did u ever make it to the clinic - if ur still here?
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Postby Sandy L » Mon Jul 31, 2006 6:22 pm

for people with chronic severe pain, narcotics are often the only source of relief. There are physiological consequences to the pain--elevation in blood pressure and elevation in corticosteroids are probably the most significant. Depression is psychological more than physiological, but is a serious complication. Short-acting opioids. like Percocet, are usually not a good way to control the pain. If you use those, taking half doses twice as often usually works better. (DO NOT CUT OxyContin, MSContin, or other long-acting forms of morphine. That can resuilt in an overdose.)
I am a physician specializing in occupational and environmental medicine. I am not an authority on HMS or EDS, but find I have several patients with the condition and am trying to learn more.
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Postby nonyanomemory » Mon Jul 31, 2006 11:14 pm

Please note the post above this one has been deleted. Moderating note for continuity.
46yr female EDS H/mobility Type c/over vascular Dxd Prf G
V Prem club ft short stature early onset varicose veins thin skin
Striae o'rthritis/porosis PHN POTS spasms n'pathic pn IBS bladder stuff bulging discs & more!

d/tr severe EDS 20 yr
nonyanomemory
Carpal tunnel
 
Posts: 2191
Joined: Tue Aug 17, 2004 9:55 am
Location: uk

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