oh my, i haven't been here in such
a long time. no internet access. it's weird to read what i wrote two years ago.
i've learned a few more things in the past two years. i had to up my vitamin D dosage quite a few times before it took effect. i had an unbelievably low vitamin D level to begin with and it took about till now to stabilise but now it's normal, taking daily vitamin D and calcium supplements of course, but i do take far more vitamin D than was suggested two years ago before Canada and other countries started updating (and raising) their recommended daily intake of vitamin D. it seems vitamin D deficiency may be far more common than doctors used to think. we don't all spend enough time in the sun anymore. (if i'm correct it said 5 or 10 minutes a day in the sun are all a healthy person needs to absorb and metabolise vitamin D. then again, my endocrinologist explained to me that for someone with a serious vitamin D deficiency, getting enough from the sun without taking supplements is hopeless. he said i'd get skin cancer before i got a normal vitamin D level.) and my mother, from whom i got HMS, has been prescribed vitamin D and calcium supplements too.
it also seems there are two types, D2 and D3. my endocrinologist said D2 is less commonly used (probably because it's more expensive or some other prosaic reason, that's my romantic guess) but it seems to be absorbed better.
another thing i found out was that meds like omeprazole (used to treat heartburn and the like) may affect bone health, because they affect gastric acidity and so one's calcium absorption may be impaired. from what i've been told and read, H2-receptor antagonists (like famotidie) seem to be less likely to be harmful than proton pump inhibitors (like omeprazole). i try to avoid PPI's altogether if i can, unless the heartburn is really bad and makes me lose my voice (which happens about once a year), otherwise i try to make do with famotidine and the like. but i'm not a doctor. this is only what seems to work for me and my lopsidedly illogical body.
HMS/EDS Hypermobility type, Fibromyalgia, Osteoporosis, chronic pain syndrome and general non-specified nutsiness (GNSN)