Prolotherapy

[dougal]

Hi guys,
thanks for all your comments - it's so good to know that there are other people like me out there. It seems to be a common theme - twisted pelvis, scoliosis, etc in my case all caused by some nerve damage in my glut from a fall.
I'm interested to know how you relocate your own joints? I have noticed that if I lie on the floor there's on awful crunching noise and then my SI feels better ! Is this what you mean?
Has anyone found prolo therapy treatment north of Leicester?
Dougal

[Spireite]

No I don't know of any good prolotherapists north of Leicester.

I have a wide variety of maneovres to relocate a variety of joints from neck to mid-feet. I have acquired this knowledge over a lot of years and some from the internet and some from personal experience of something which worked wonders for me by chance once and then you just continue it. I presume you are thinking of your SIJs? Yes, lying on the floor can effect your SIJs and was one thing I couldn't do for many years to physios incredulity because of the detrimental effect it had on my legs. What works for the right side doesn't work for my left and vice versa! I should also give a health warning too, as what unjams my L5, caused my friend's L5 to jam. If it ain't broke don't fix it. To unjam you need to end of range in the other direction or traction the joint with extreme care. One side for me is a full squat and knee to mid-chest (may not be suitable if you have dodgy knees) and the other side is to lie, arch and twist. Maybe for you lying on the floor is simply what you need to do? If it works, it works and don't try anything else.

[Raedmarh]

I just came across this snip of information and was wondering if anyone had any experience with it?

Treatment of Joint Hypermobility Syndrome, Including Ehlers-Danlos Syndrome, with Hackett-Hemwall Prolotherapy
Some of the rationale for using Prolotherapy for patients with Joint hypermobility syndrome (JHS) and Ehlers-Danlos Syndrome (EDS) include that it has a high safety record, is comprehensive (all or most joints can be treated at each visit), is an outpatient procedure, is cost effective (compared to surgery), pain relief is often quick, and it provides joint stabilization. Perhaps its greatest asset is the fact that this one treatment modality can handle most of the painful musculoskeletal conditions that occur in individuals with EDS and JHS.

[Rosie]

Hi

If you read through this thread you will see that some members have had prolotherapy. At the moment, I don't think that there is any medical or scientific proof that prolo works.

Rosie

[nicola]

Hello all,

Im new to this site, but have found this thread very helpfull. I am interested in prolotherapy, I am currently having prolo done on the base of my skull for headaches and after 4 sessions I have seen a positive improvement. At the moment only having 1 small area injected and wish i could have more. I was in quite a bad car accident 2 years ago and still suffering with chronic neck and back pain which interferes and limits every aspect of my life, I've had numerous scans done and all clear. can anyone recommend a Prolotherapist? I am so desperate to find someone who willing to inject more than 1 area

[Spireite]

Nicola, Good to hear it is helping you. I can recommend a prolotherapist, but where are you and how far can you travel? Who have you seen so far? Best to PM me so as not to mention names on here. I area is definitely not enough for us. I have my whole neck and spine done. Does he inject you with or without X-ray?

[Katie_89]

Hello everyone,

I have HMS and have suffered really badly with chronic pain all over for almost 10 years now. I have recently heard about Prolotherapy and I'm keen to give it a try. I want to know if anyone has any experience of Prolotherapy Practitioners in West Sussex? The Oving Clinic or anybody who practises in Brighton/Hove?

I am doing as much research into it as I can before I go ahead and try it. I'm planning on talking to my consultant about it at my next appointmet to see what he thinks and if he can refer me but I am aware NHS docs don't necessarily know much about it.
~ Katie

[~elizabeth~]

Have been reading this thread with interest. My main worry is that it might cause additional damage in some way which might not be a good idea long term, but have heard that others have had good results from it. I'm having lots of odd and really unpleasant paresthesias in my arms/head/mouth which I now realise might be due to spinal instability, particularly as my neck has become stiff/painful, and the clicking noises a lot more noticeable. I'm in Oxford if anyone could pm me with any recommendations for osteopaths or other practitioners who might be able to help in my area. My GP has referred me for physiotherapy on the NHS but I would guess this will take a time to come through plus I'm not altogether sure that it's a good idea if they have little experience of hypermobility.

[Spireite]

Hi Elizabeth,

I have PM'd you and you do sound a lot like me.

Also, when able, do check out the local groups and you may wish to join our South Central get-togethers. The next is on 20th October and may be in Oxford depending on who can make it. Do let me know if you are interested. Other Oxford people could suggest practitioners in the area and I and someone else could chat about prolo.

[Chimaera]

Hi everyone. I'm new to this so bear with! I've put a bit of my history in my introductory message. The crux of it is that i while I don't have hypermobility, I share some of your symptoms - ie. pelvic girdle pain - since a car accident 7 years ago.

The NHS's conclusion is that they cant see anything on (numerous) xrays or scans to explain it so I must have neuropathic pain. Was fit and well before and have tried lots of different private treatments, exercises, stretches and although theres lots of things that make it worse ,nothing makes it better! I think I have some sort of SIJ problem, possibly hypermobile and the only treatment I havent tried is propotherapy.

I've read this thread from end to end and it seems as tho some of you have had some success with prolo. What I really need from you guys please are PMs that will help me choose who to go to. I.e . names of practitioners that have successfully treated you. I've done alot of research and several names come up in the UK and as my funds are striclty limited I want to give it my best shot

I know there are no guarantees but I cant go on like this - I am self-supporting and have managed to keep working fulltime so far but its all I do and come home in tears most nights and dont think I can do it much longer.

Any replies very much appreciated - peolpe who arent in constant pain dont really 'get it' do they!

Love and hugs

[mikev]

Hi

If you read through this thread you will see that some members have had prolotherapy. At the moment, I don't think that there is any medical or scientific proof that prolo works.

Rosie

It is the same PRP for me which works on same principle but is far more expensive .

And even with that there is no conclusive evidence it works because none of the doctors will agree /reveal what techniques it is they use - so its basically even more unpredictable than Prolo at x2 or 3 the price because there is no bassline / standard to say what method is doing what and why.

Also ( as far as I know ) Uk prolo usually uses PG2 which has been banned in other countries because its considered toxic.

I have never tried PG2 and personally wouldnt risk it myself , Im more interested in using PRP with stem cell advancements ( one girl I know who is back cycling through it ) or perhaps Prolostem ( which is like the poormans PRP ) cheaper - but not so cheap if you find regular Prolo expensive.

mike

[Spireite]

It certainly isn't the case that all UK prolo is P2G. There are horses for courses. A good doctor should be flexible and adaptable as to what the patient wants and what works best for the patient as with any aspect of medicine.

[mikev]

It certainly isn't the case that all UK prolo is P2G. There are horses for courses. A good doctor should be flexible and adaptable as to what the patient wants and what works best for the patient as with any aspect of medicine.

Well , in principle that correct , the trouble for me is that there is no one up here ( Scotland )who even does Prolo - so it actually works out better for me to travel overseas and live cheaply while i get it - also the doctors here dont have anywhere near the same experience compared to say the US, so most of them wouldnt be able to inject in the areas I need any way ( again lack of practice perhaps )

Thats not a dig - just fact due to low population here lack of people being seen / treated .

I havent checked prices here lately but for $350 I can get 2 areas with no wait - by someone with over 30yrs experience.

mike

[mikev]

If any one is interested in PRP Id really be careful ( unless your rich fo course ) who you got to and where .

Your not going to get this in the UK as far as I know - or at least cheap ( no surprises there ) so Id look into the US if you can afford it .

Also I'd recommend you read some of the accounts and issues others have had regarding PRP here first, as there are a lot of variables and questions you really need to consider depending on what type you get done.

The more reports however I readlike this.. make me cautious , as its not just the the harvesting or whats added to the plasma , but how its sustained once its been delivered too it seems..

mod edit - quote removed due to copyright

mike

[~elizabeth~]

Note to mods, I keep seeing quotes removed because of 'copyright'. I meant to comment on this last time, when you erroneously removed a paragraph I posted quite legitimately. It is perfectly reasonable to quote a portion of text from a book, website etc if it illustrates a point for discussion, this in no way infringes copyright under fair usage. If you are not familiar with fair usage, here are some guidelines:

http://en.wikipedia.org/wiki/Fair_use#C ... rstandings